Rare Disease Advocacy World highlights the industry game changers that are accelerating rare disease research & drug developement.  
Join them & 1,000+ attendees this April to discuss the most pressing challenges and opportunities to bring rare disease therapies to patients faster. 

Featured Speakers Include:

Peter Saltonstall
President and Chief Executive Officer

Yann Le Cam
Chief Executive Officer

Preston Campbell

Mariana Fagnilli
Head of Global Patient Advocacy

Kenneth Hobby

Steven Kamisky 
Chief Scientific Officer

Pamela Tenaerts
Executive Director

Meghan Miller 
Project Leader/Discovery Scientist, Rare Diseases

Tricia Mullins 
Board Member

Carole Ben-Maimon
President & Chief Executive Officer

Christopher Missling

Ron Bartek

Christopher Austin

Jayne Gershkowitz
Senior Vice President & Chief Patient Advocate 

Kevin Huang

Excellent gathering of stakeholders in rare diseases

From discussions on rare diseases to the sustainability of our health systems

Leaders from every sector of rare diseases


Interested in attending Rare Disease Advocacy World?

Register now >>