Patient Data Seminars

 

 

Patient Data Seminar, Tuesday 23 April 2024

Jason Colquitt
Patient Data Seminar
14:59

Chair's Remarks

Jason Colquitt, Chief Executive Officer, Across Healthcare
Pamela Gavin
Patient Data Seminar
15:00

Walking side by side: Co-designing patient registries

Pamela Gavin, Executive Vice President, National Organization for Rare Disorders (NORD)
Huong Huynh
Patient Data Seminar
15:20

Revolutionizing care: Unlocking the value of patient data

Huong Huynh, Director of Regulatory Science, Critical Path Institute
Huong Huynh
Patient Data Seminar
15:20

Unlocking the value of patient data (draft)

Huong Huynh, Director of Regulatory Science, Critical Path Institute
Melissa Kennedy
Patient Data Seminar
15:40

Clinical and caregiver data collection in Rett Syndrome: A successful registry launch

Melissa Kennedy, Chief Executive Officer, International Rett Syndrome Foundation
Panel discussion
Patient Data Seminar
16:00

The value of peer collaborative data collection in a rare disease with no specific symptoms

Leslie Edwin, President, Cushing's Support & Research Foundation
Gretchen Jordan, Associate Director, Cushing's Support & Research Foundation
Benjamin Forred
Patient Data Seminar
16:20

Coordination of Rare Diseases at Sanford (CoRDS): Centralized international patient registry for all rare diseases

Benjamin Forred, Director of Translational Research and the CoRDS Registry, Sanford Health
Jason Colquitt
Patient Data Seminar
16:40

Co-Producing data for daily care and regulatory submissions

Jason Colquitt, Chief Executive Officer, Across Healthcare
last published: 25/Apr/24 19:55
BOOK NOW

 

 

Get Involved At World Orphan Drug Congress USA

 

To Sponsor Or Exhibit

 
 

Justin Franks
justin.franks@terrapinn.com
t/ +1 914 819 3506

 

 

 

To Speak

 
 

Gina McHugh
gina.mchugh@terrapinn.com
t/ +1 646 619 1775

 

 

 

Marketing & Press Opportunities

 
 

Kaylie Brogan
kaylie.brogan@terrapinn.com