Alex Meixner is the Vice President of State Policy at The ALS Association, leading a team of government relations and grassroots professionals as we pursue our mission to make ALS livable and cure it. Prior to joining The ALS Association in 2022, he worked for over a decade at the American Heart Association, leading state and local advocacy campaigns and managing state advocacy staff. Before pivoting to state advocacy, Alex spent eight years in Washington, DC, where he worked for a nonprofit focused on international peacekeeping and genocide prevention policies after beginning his career as a congressional staffer and campaign aide. Through it all, Alex has helped to shape and enact public policies at every level of government, from city ordinances to UN Security Council resolutions. He has served on various boards, commissions, and coalition leadership teams iacross the country, from serving as a fellow with the Truman National Security Project, to serving as a member of the City of Chicago Public Health and Safety strategic plan research team. Alex is a California native, a graduate of Tulane University, and a resident of Valparaiso, Indiana where he lives with his wife and two sons.
This panel will explore State and Federal challenges that can disrupt patient access to rare therapies. And while exploring those potential barriers, panelists will review policies that can bridge access issues, enhance transparency and accountability, as well as lower patient out-of-pocket costs. What you need to know to engage in policy discussions and debates that will shape the future of patient access to care and therapies in the 21st century.