Pathways for Rare and Orphan Solutions
PROS Foundation is a 501(c)(3) non-profit organization dedicated to helping bring treatments to patients living with rare diseases worldwide.
PROS supports rare disease patient organizations with:
Development and Support Patient Registries and Natural History Studies
Establishment of care center networks
Biobank setup
Retrospective Chart Review
Medical Records Retrieval
Coordination of Patient Focus Groups
Indication Support Groups
Work with Corporate and Advocacy Partners