Pathways for Rare and Orphan Solutions

Supporting Partner

Pathways for Rare and Orphan Solutions

PROS Foundation is a 501(c)(3) non-profit organization dedicated to helping bring treatments to patients living with rare diseases worldwide.

PROS supports rare disease patient organizations with:

  • Development and Support Patient Registries and Natural History Studies

  • Establishment of care center networks

  • Biobank setup

  • Retrospective Chart Review

  • Medical Records Retrieval

  • Coordination of Patient Focus Groups

  • Indication Support Groups

  • Work with Corporate and Advocacy Partners



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Get Involved At World Orphan Drug Congress USA

 

Connect with us

 
 
 

 

To Sponsor Or Exhibit

 
 

Jack Rendell
jack.rendell@terrapinn.com
t/ +44 07577689029

 

 

 

To Speak

 
 

Kaylee Nguyen
kaylee.nguyen@terrapinn.com
 

 

 

 

Marketing & Press

 
 

Jasper Cameron
jasper.cameron@terrapinn.com