Imperfect JOY

Supporting Partner

At Rare Rebels™, we use photojournalism, filmmaking, and podcasting to share the deeply personal stories of rare disease patients and the rebels standing beside them to make a difference. By capturing these stories, we raise awareness to show the world that rare disease matters because people matter. Through this collective strength, we empower the community to work together toward a future in which no patient is left without treatments because their disease is “too rare”.

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