Global Genes

Supporting Partner

Global Genes is a 501(c)(3) non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients, their families and disease communities globally.

Global Genes was founded in 2008 to help build and unite the rare disease community. For almost two decades, Global Genes has been dedicated to connecting, empowering and inspiring the rare disease community.

Today’s patient advocates are leading in ways that weren’t possible even 10 years ago. Advances in therapy development, precision medicine and social media have laid the foundation for this sea change. Patient advocates are leading because of their personal urgency. Global Genes’ updated mission is to equip these heroic patient advocates, and help them develop vital ecosystems to achieve critical progress.

website