The evolution of high quality sites & patient advocacy groups driving rare disease research in Korea
A collaborative approach: the only way to address the challenges of rare diseases clinical research – Patient Access, Site Engagement & Innovative platforms
Enhancing the rare disease & orphan drug research landscape in Korea – a collaborative approach, the key to success
Korea - rare disease landscape
The evolution of high quality sites & patient advocacy groups driving rare disease research in Korea
A collaborative approach: the only way to address the challenges of rare diseases clinical research – Patient Access, Site Engagement & Innovative platforms
Regulatory approval and market access policies in each of the countries
What are the predominant diseases in the country? What are the known rare disease indications in the country?
Issues on rare disease awareness, affordability and political will
Are rare diseases and orphan drug being discussed at all? What does the government think of it and what could be a potential next step towards a Rare Disease Act?
What can patients, drug manufacturers and other stakeholders do to help?
Understanding the challenges Hong Kong, Malaysia, Indonesia, Thailand and Singapore have in providing orphan drugs to their rare disease patients
Regulatory approval and market access policies in each of the countries
What are the predominant diseases in the country? What are the known rare disease indications in the country?
Issues on rare disease awareness, affordability and political will
Are rare diseases and orphan drug being discussed at all? What does the government think of it and what could be a potential next step towards a Rare Disease Act?
What can patients, drug manufacturers and other stakeholders do to help?