Jonathan Bracey | Founder
MVA Society

Jonathan Bracey, JB has worked in pharma for the last 25 years.  This has included 'big pharma', generics and pharma services.  In 2023 his son was diagnosed with a rare childhood cancer and an ultra-rare condition called Mosaic Variegated Aneuploidy (MVA) syndrome.  In Nov 2024 the MVA Society was formed to create the first charity and patient advocacy organisation in the world focused on this 1:1,000,000 ultra rare condition.  JB is now championing patient advocay and rare diseases with Tanner Pharma, which includes pursuing the research goals of the MVA Society.