Lynn Albizo | Chief Public Policy Officer
Immune Deficiency Foundation

Lynn H. Albizo is the Chief Public Policy Officer for the Immune Deficiency Foundation, where she has worked for 9 years. She is an accomplished healthcare policy strategist experienced in legislative and regulatory advocacy. Her previous professional background includes serving as a Senior Analyst for the Maryland Health Care Commission, Director of Public Affairs for the Maryland Addictions Directors Council, Executive Director of NAMI Maryland, and providing government relations consulting. She has proven expertise in Medicare, Medicaid, and private health insurance policies, as well as extensive experience addressing issues related to vaccines, newborn screening, rare and chronic diseases, and behavioral health. She has a Bachelor of Arts degree from Union College and a Juris Doctorate from the George Washington University National Law Center.

Appearances:

Day 2 - World Orphan Drug Congress USA 2026 @ 12:40

The Opportunities and Challenges Around Newborn Screening Policies for Rare Diseases

Examine current gaps and emerging opportunities in newborn screening (NBS) for rare diseases across state, national, and global frameworks.
Discuss barriers to adding new rare diseases to screening panels, including evidence requirements, economics, and policy timelines.
Highlight how early detection impacts clinical outcomes, health-system burden, and long-term access to treatment.

Lynn Albizo, Chief Public Policy Officer, Immune Deficiency Foundation

Michelle McClure, Director of Public Policy, American College of Medical Genetics and Genomics