Bringing together specialised biotechs/pharmas, government, payers, investors & patient groups in one platform, this event offers a unique opportunity to increase brand visibility amongst the rare disease industry in Asia.
Position yourself as a leader by delivering a keynote presentation or securing an exhibition booth.
In 2011, Edmund’s younger son Branden was diagnosed with Spinal Muscular Atrophy (SMA). It was difficult to find care and support for SMA in Malaysia and the standards of care were relatively poor. A few years later, he founded We CARE Journey (www.wecarejourney.org), a not-for-profit with a...
Cynthia Magdaraog, Philippine Society for Orphan Disorders, Philippine Society for Orphan Disorders
Ms. Cynthia K. Magdaraog is currently president of the Philippine Society for Orphan Disorders, Inc. (PSOD), a non-stock, non-profit organization, established to assist persons (mostly children) afflicted with a rare disease, to access treatment and supportive care for its members. She assumed the ...
Mr Kenneth Mah, Executive Director, Rare Disorders Society (Singapore)
Mr Kenneth Mah is the Vice President and co-founder of the Rare Disorders Society (Singapore) - RDSS. Together with his wife, Mrs Patricia Mah, he leads the rare disorders community in Singapore and under his leadership, RDSS has been awarded the charity status in 2015. Mr Kenneth Mah continues to...
Dr Carmencita D Padilla, Founding Chairman, Philippine Society for Orphan Disorders
Dr. Padilla is Professor of Pediatrics at the College of Medicine and currently Chancellor of University of the Philippines Manila (www.upm.edu.ph). Recognizing her varied contributions to the academic growth of genetics in the Philippines, she was conferred Academician of the National Academy of...
Ravdeep Singh Anand, Founder - President, Dystrophy Annihilation Research Trust
Mr. Ravdeep Singh Anand, an entrepreneur who graduated from Cyprus College, Nicosia. He set up Travel World (1998-2004) where he was responsible for marketing and operations. In 2001 he started Breakdown 365, a 24 X 7 on road assistance for cars, a helpline service catering to 200 cities across...
Hazel Gorham, Senior Director of Biosimilars Development, PRA Health Sciences
Hazel Gorham, PhD, Senior Director, Biosimilars Development, Scientific Affairs Dr Gorham has 29 years of experience in both academic and pharmaceutical research and pharmaceutical industry across a wide range of roles including developing the development of a number of clinical development plans...
Carolyn Anne Hall, Head of Patient Service APAC, Shire
Carolyn joined Shire ( formerly Baxalta, formely Baxter) in November 2008 and has close to 24 yrs of experience in the healthcare industry initially in Europe and for the last 14 years in Asia in both the device and Pharma /Biotech sector. Carolyn began her healthcare career in research then moved...
Terry Lai, age 27. Vice chairman of Hong Kong Mucuopolysaccharidoses & Rare Genetic Diseases Mutual aid groupA rare disease patient with Pompe DiseaseDiagnosed Pompe since age 14 with no medication until the Enzyme Replacement Therapy (i.e. ERT) starts on 2011.He graduated from Hong Kong...
John Lim, Executive Director, Duke-NUS Centre of Regulatory Excellence (CoRE)
John Lim is a medical graduate of the National University of Singapore (NUS), and holds Masters degrees in Public Health from NUS and in Health Policy and Management from Harvard University. He is a Specialist in Public Health Medicine, a Fellow of the Singapore Academy of Medicine, and Adjunct...
Rajakanth R, Executive Director, Rainbow Across Borders Limited
Raj has been involved in non-profit healthcare management for more than 18 years, focusing on illness specific programmes for patients and their caregivers. He has spearheaded a number of regional efforts in building awareness and creating advocacy, empowerment and access programmes with patient...
After working as a retail pharmacist for 10 years, I joined some doctors to set up a pharmaceutical wholesale business in 2008. We began working with Hospitals to source for Orphan drugs, Speciality drugs, Exempted product and pre-approved/Phase II &III drugs to provide patients with the best...
Teik Lee Yu, Regional Marketing Lead (Rare Diseases-Pompe), Emerging Markets, Sanofi Singapore
Teik-Lee joined Sanofi Genzyme in February 2015 and has more than 15 years of commercial experience in the pharmaceutical industry, initially in Malaysia, Singapore, Brunei and in more recent years broadened his expertise to include regions such as the Asia-Pacific and Emerging Markets.In the...
Young Joo PARK, Senior Director, Business Development & Global Cooperation, KoNECT
Young Joo PARK, Ph.D. obtained Ph.D. degree in Epidemiology from Seoul National University.She started her career in MSD Korea as a specialist in Epidemiology and Biostatistics. She extended her experiences to data management, medical writing, safety management, and clinical operations. Then she...
Catherine Jayasuriya, Executive Director of Coalition Duchenne Director, Coalition Duchenne
Catherine Jayasuriya is a film director and the founder and executive director of Coalition Duchenne, a non-profit focused on raising funds and awareness for Duchenne muscular dystrophy.Catherine is half Malaysian and half English, and lives with her husband and three children in California. Her...
Hans-Peter Guler, SVP, Clinical Development, INC Research
Hans-Peter Guler, MD, Senior Vice President, Clinical Development, joined INC Research in September 2010 as Vice President, Clinical Development. He has over 20 years of experience in the clinical research industry. Prior to joining INC Research, Hans-Peter served as Chief Medical Officer/Vice...
Dr Maria Melanie Liberty Alcausin, Director, Newborn Screening Reference Center, National Institutes of Health, University Of The Philippines Manila
Dr. Maria Melanie Alcausin is the Director of the Newborn Screening Reference Center and a Research Assistant Professor at the National Institutes of Health of the University of the Philippines-Manila. She is also a Clinical Associate Professor at the Department of Pediatrics of the Philippine...
Regional Marketing Lead (Rare Diseases-Pompe), Emerging Markets
Young Joo PARK
Senior Director, Business Development & Global Cooperation
Executive Director of Coalition Duchenne Director
SVP, Clinical Development
Dr Maria Melanie Liberty Alcausin
Director, Newborn Screening Reference Center
National Institutes of Health, University Of The Philippines Manila
"It is the only pan-indication rare disease meeting in Asia and a great place to meet potential clients and collaborators."
4 CONFERENCE THEMES
FASTER & CHEAPER ACCESS TO ORPHAN DRUGS
COUNTRY PERSPECTIVE: SUPPORTING ORPHAN DRUG ACCESS
BENEFIT VS. COST & STANDARD OF CARE
A*S.T.A.R. Singapore Immunology Network A.F.T. Orphan Actelion Actelion Pharmaceuticals Alexion Pharmaceuticals Australasia Pty Ltd Alnylam Pharmaceuticals AMICULUM Amiculum Consulting Asklepion Pharmaceuticals LLC AstraZeneca ASUS Computer International Australian Government AxxessBio Pte Ltd B.T.I Baxalta Baxalta Singapore Pte Ltd Bayer Bayer Healthcare Beijing Genome Institute Beijing Yuan Tang Institute Of Gene Science Biogen Idec BioMarin BioMarin Pharmaceutical Inc. Bioneur Bioprocessing Technology Institute Singapore Biovalence S/B Boston Consulting Group Bristol-Myers Squibb C.M.I.C. Holdings Co Ltd Carcinoid & Neuroendocrine Tumor Society Centogene India Pvt Ltd Chinese Organization for Rare Disorders Cimbria As Clinical Nutrition Research Centre NUS Clinigen Group plc Club Rainbow Comradis Cote Orphan Consulting Cytonet Gmbh DEBRA DEBRA International Dipharma SA Dipharma SA Edimer Pharmaceuticals Inc Eisai Clinical Research Singapore Pte Ltd Eisai Pharmaceuticals India Pte. Eli Lilly Emerge Health Pty Ltd Equisnzaroo Esthelis Clinic Excelsior Biopharma Inc. Food and Drug Administration Fuld & Company Genome Institute of Singapore Genzyme Genzyme A Sanofi Company Genzyme Korea Genzyme Singapore Pte Ltd GlaxoSmithKline GNI Ltd. and Shanghai Genomics H.A.E.i International Patient Organization for C1 Hong Kong Mucopolysaccharidoses & Rare Diseases Mutual Aid Group HongKong Polytechnic University Institute for Optimizing Health Outcomes Institute of Medical Biology, A*STAR Integrated Development Associates J.C.R. Pharmaceuticals Co Ltd King Baudouin Foundation Korea Organization for Rare Diseases Korea Orphan Drug Center Licensing & Development LINK Healthcare LSD Support Society Malaysia Lysosomal Diseases Association Malaysia Metabolic Society Malaysian Rare Disorders Society Medicines Australia Merck Sharp & Dohme Ministry of Health Ministry of Health Malaysia Pharmaceutical Services Division Muscular Dystrophy Foundation India Nanolek LLC National Health Insurance Administration, Ministry of Health and Welfare National Institutes of Health National University Of Singapore New Zealand Organisation for Rare Disorders Nobelpharma Co., Ltd. Novartis Novartis Pharmaceuticals (HK) Limited Novena Cancer Centre Orphan Druganaut Blog Orphan Europe Orphan Trust Japan Co., Ltd. Osaka University P.B.L. Solutions Pfizer Private Limited Pharm-D Phebra Pty Ltd Plus One HealthCare Consulting Project Manager PTC Therapeutics Quintiles East Asia Pte Ltd Rare Disorders Society (Singapore) Rare Genomic Asia Rare Genomics Institute ReGenXBio Royal Holloway, University of London Sanofi Sanofi-Aventis Singapore Pte Ltd SGPharma Pvt. Ltd. Shionogi Shire Shire AG Shire Australia Shire Hgt Shire Pharmaceuticals Inc Shire Singapore Pte Ltd Singapore Immunology Network (SIgN) Singapore Immunology Network, ASTAR Social Security Association Society of Rare Disorders (Japan) Stiefel, a GSK company Supporting Organization for Patients with Rare Diseases (SORD) SymBio Pharmaceuticals Limited Taho Pharmaceuticals Taiwan Foundation for Rare Diseases (TFRD) Tanner Pharma Group Thailand Fda Toho Orphan Reliance Transmedic Healthcare Transmedic Pte Ltd Tunghai University / Chung Gung University / Toastmasters International (NGO) U.S. Hereditary Angioedema Association Universiti Kebangsaan Malaysia Valentech Pharma Valiant Biopharma Sdn Bhd