Jasiek Tabeau | Patient Advocate & Researcher
Glioblastoma Care

Jasiek Tabeau, Patient Advocate & Researcher, Glioblastoma Care

Jasiek Tabeau is a glioblastoma patient, patient advocate and founder of Glioblastoma.care, a foundation dedicated to helping patients explore treatment opportunities and improving access to innovative care. Following his diagnosis in October 2025, Jasiek applied his professional experience in technology, evidence-based decision-making and international collaboration to researching glioblastoma treatments worldwide. His own treatment journey has included standard therapy, Tumor Treating Fields and personalised cancer vaccination. Many of these treatments are unavailable or not reimbursed in the Netherlands, requiring patients to seek and personally fund care abroad. Alongside his advocacy work, Jasiek is Director of Solution Engineering at Keysight Technologies. Guided by his motto“Heal myself, help others, change the system” he campaigns for a healthcare system in which promising and evidence-based treatments are not determined by geography or a patient’s ability to pay.

Appearances:



Pre-congress workshops @ 15:30

From EU Approval to Patient Availability: Rethinking the Path for Orphan Drugs in The Netherlands

A medicine may be approved in Europe and still remain out of reach for patients in the Netherlands. Why?

Three patient organisations will bring the access challenge to life through real-world cases before a multi-stakeholder panel addresses the questions that matter: Where does the system fail people living with rare diseases? Which barriers can we tackle together? And what must change now to secure treatment for today’s patients and those still waiting for a diagnosis?

This is an interactive session. Through Mentimeter and an open microphone, participants will challenge the panel, test practical solutions and help identify next steps towards faster, fairer and more sustainable access to orphan medicines for people living with rare diseases in the Netherlands.

Moderator: Thomas Broekhoff, Program Manager Medicines, hollandbio
Thibault Krommenhoek, Patient Advocacy and Public Affairs, Belangenvereniging van Kleine Mensen - Dutch Skeletal Dysplasia Organization
Sanne van Rijn, Patient advocate & psychologist, Vereniging HCHWA-d
Jasiek Tabeau, Patient Advocate & Researcher, Glioblastoma Care
Hanka Dekker, exec director, VKS
last published: 27/Oct/26 13:03 GMT

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