Giada Farinelli | Regulatory Affairs Manager
Fondazione Telethon

Giada Farinelli is Regulatory Affairs Manager at Fondazione Telethon, a leading Italian biomedical charity dedicated to advancing research and developing treatments for rare genetic diseases. In her role, she supports the regulatory strategy and progression of innovative therapies, helping translate scientific advances into patient-focused development programmes.

Her work sits at the intersection of research, regulatory science and access, contributing to the complex pathways required to bring transformative treatments for rare conditions closer to the people who need them. At Fondazione Telethon, she is part of a mission-driven organisation that combines academic research, therapeutic development and collaboration across the rare-disease ecosystem.

At the World Orphan Drug Congress 2026, Giada will bring perspectives from a foundation-led model of rare-disease innovation, with a focus on regulatory considerations, stakeholder collaboration and the shared goal of accelerating meaningful options for patients and families.