•  

    THE GLOBAL ORPHAN DRUG
    CONFERENCE AND EXPO

     

    BOOK BEFORE 29TH JAN TO SAVE UP TO $920

  • Bringing stakeholders from across the world together to spearhead orphan drug development

     

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  • The place to be for leaders in the rare disease community

    Hans Schikan, CEO, Prosensa Therapeutics Bv

  • Fostering partnerships and collaboration amongst industry, governments, payers, investors and patients

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This is the largest global orphan drug industry event

CONFERENCE

Agenda at World Orphan Drug Congress USA

With keynotes, interactive discussions, workshops and roundtables, this event is designed to tackle the most important challenges facing the orphan drug and rare disease industry.

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EXHIBITION

Exhibit at World Orphan Drug Congress USA

This is the perfect platform to generate new leads, create brand awareness and launch new products. No other marketing gets you in a room with so many potential customers looking for suppliers.

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NETWORKING

Network at World Orphan Drug Congress USA

We offer a variety of networking opportunities from Speed Networking to 1-2-1 Partnering sessions to ensure that you meet as many other attendees as possible in 2 days.

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Together with:

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Choose your package

Prices increase after 19th Feb – book now to get these prices

 

2 DAY CONFERENCE


Individual Pass

USD $2,910

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Group Booking of 3 or more

USD $2,765

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3 DAY CONFERENCE


Individual Pass

USD $3,910

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Group Booking of 3 or more

USD $3,715

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Download the agenda

World Orphan Drug Congress USA 2016 will be the benchmark for doing business when it comes to technology and innovation. And you can be there with us. Download the preview agenda for more information on how your company can partner with event to meet new clients and increase your sales.

 

Find out:

  • What the event is all about
  • How you can get involved
  • Who you will meet
  • What makes our event so unique

 

DOWNLOAD BROCHURE


 

Announcing the 2016 Speaker line-up

 

  • Mr Mark Baglin at World Orphan Drug Congress USA 2016
    Mr Mark Baglin
    Vice President, Product Strategy, Team Leader, Rare Disease Business Unit
    Shire Pharmaceuticals
    Alison Bateman House at World Orphan Drug Congress USA 2016
    Alison Bateman House
    Professor
    N.Y.U. Langone Medical Center
    Mauricio Berdugo at World Orphan Drug Congress USA 2016
    Mauricio Berdugo
    Associate Director, Health Science Executive
    Boehringer Ingelheim
  • Mr Max Bronstein at World Orphan Drug Congress USA 2016
    Mr Max Bronstein
    Senior Director, Public and Government Relations
    EveryLife Foundation for Rare Diseases
    Mr Kyle Brown at World Orphan Drug Congress USA 2016
    Mr Kyle Brown
    Founder and Chief Executive Officer
    PatientCrossroads
    Mr Yann Le Cam at World Orphan Drug Congress USA 2016
    Mr Yann Le Cam
    Chief Executive Officer
    EURORDIS
  • Art Caplan at World Orphan Drug Congress USA 2016
    Art Caplan
    Head, Division of Medical Ethics
    N.Y.U. Langone Medical Center
    Marc De Garidel at World Orphan Drug Congress USA 2016
    Marc De Garidel
    Chairman and CEO
    Ipsen
    Daniel Donovan at World Orphan Drug Congress USA 2016
    Daniel Donovan
    Co-Founder and CEO
    Clear Pharma
  • Ms Kate Frantz at World Orphan Drug Congress USA 2016
    Ms Kate Frantz
    Awareness Program Manager
    International Pemphigus And Pemphigoid Foundation
    Ms Pat Furlong at World Orphan Drug Congress USA 2016
    Ms Pat Furlong
    Founding President and Chief Executive Officer
    Parent Project Muscular Dystrophy
    Mr James Greenwood at World Orphan Drug Congress USA 2016
    Mr James Greenwood
    Chief Executive Officer
    Biotechnology Industry Organization
  • Ron Guido at World Orphan Drug Congress USA 2016
    Ron Guido
    Senior Vice President of Global Regulatory Affairs and Chief Compliance Officer
    Veloxis Pharmaceuticals
    Bruno Hatschbach at World Orphan Drug Congress USA 2016
    Bruno Hatschbach
    President
    National Association of Rare Diseases, Brazil
    Robert Haws at World Orphan Drug Congress USA 2016
    Robert Haws
    Doctor of Pediatric Nephrology
    Marshfield Clinic
  • Samit Hirawat at World Orphan Drug Congress USA 2016
    Samit Hirawat
    Senior Vice President
    Novartis Oncology
    Emil Kakkis at World Orphan Drug Congress USA 2016
    Emil Kakkis
    President & CEO
    Ultragenyx Pharmaceutical Inc.
    Virginia Kimonis at World Orphan Drug Congress USA 2016
    Virginia Kimonis
    Professor, Department of Pediatrics
    University of California Irvine School of Medicine
  • Agnes Klein at World Orphan Drug Congress USA 2016
    Agnes Klein
    Director, Radiopharmaceuticals and Bio Therapeutics
    Health Canada
    Tomoko Kodama at World Orphan Drug Congress USA 2016
    Tomoko Kodama
    Invited Researcher, Department of International Health and Collaboration
    National Institute of Public Health Japan
    Laurie Letvak at World Orphan Drug Congress USA 2016
    Laurie Letvak
    Vice President, Clinical Development Policy
    Novartis
  • Wendi LeVigne at World Orphan Drug Congress USA 2016
    Wendi LeVigne
    Vice President Manufacturer Relations
    Oneworld
    Laura Moore at World Orphan Drug Congress USA 2016
    Laura Moore
    Health Psychology Specialist
    Atlantis Healthcare
    Richard Moscicki at World Orphan Drug Congress USA 2016
    Richard Moscicki
    Deputy Director for Science Operations, CDER
    FDA
  • Yukiko Nishimura at World Orphan Drug Congress USA 2016
    Yukiko Nishimura
    Chief Secretariat of International Relations
    Japan Patients Association, ASrid
    Ian Phillips at World Orphan Drug Congress USA 2016
    Ian Phillips
    Director, Center for Rare Disease Therapies
    Keck Graduate Institute of Applied Life Sciences
    Mr Stephen Rose at World Orphan Drug Congress USA 2016
    Mr Stephen Rose
    Chief Research Officer
    Foundation Fighting Blindness Inc
  • Steven Ryder at World Orphan Drug Congress USA 2016
    Steven Ryder
    Senior Vice President, Chief Development Officer
    Alexion Pharmaceuticals
    Mr Peter Saltonstall at World Orphan Drug Congress USA 2016
    Mr Peter Saltonstall
    Chief Executive Officer
    National Organization For Rare Disorders
    Rob Scott at World Orphan Drug Congress USA 2016
    Rob Scott
    Head, Global CV, Metabolic and Neuroscience Development and Development Design Center
    Amgen
  • Bruno Sepodes at World Orphan Drug Congress USA 2016
    Bruno Sepodes
    Chair, Committee for Orphan Medicinal Products (COMP)
    European Medicines Agency
    Nancy Silliman at World Orphan Drug Congress USA 2016
    Nancy Silliman
    VP, Biostats, Epidemiology, Data Management & Programming
    Alexion Pharmaceuticals Inc
    Maurício Silva de Lima at World Orphan Drug Congress USA 2016
    Maurício Silva de Lima
    Vice President, US Medical Affairs Head, Spectrum Medical Unit
    Genentech
  • Charles Stanley at World Orphan Drug Congress USA 2016
    Charles Stanley
    Medical Director, Congenital Hyperinsulinism Center
    Children's Hospital of Philadelphia
    Charles Stark at World Orphan Drug Congress USA 2016
    Charles Stark
    Senior VP, Research and Development
    Emmaus Life Sciences, Inc
    Keith Watts at World Orphan Drug Congress USA 2016
    Keith Watts
    Executive Vice President, Strategic Services at One-World
    Oneworld
  • Roham Zamanian at World Orphan Drug Congress USA 2016
    Roham Zamanian
    Associate Professor of Medicine, Director, Adult Pulmonary Hypertension Service
    Stanford University School of Medicine
    Guisela Zurich at World Orphan Drug Congress USA 2016
    Guisela Zurich
    Head of Registries, ANAMED
    National Medicines Agency, Chilean Public Health Institute
    Benoit Arnould at World Orphan Drug Congress USA 2016
    Benoit Arnould
    Senior Director, Patient-Centered Outcomes
    Mapi
  • Adam Barak at World Orphan Drug Congress USA 2016
    Adam Barak
    Managing Director
    PPi Healthcare Consulting
    Ms Laurie Burke at World Orphan Drug Congress USA 2016
    Ms Laurie Burke
    Founder
    LORA Group
    John Coster at World Orphan Drug Congress USA 2016
    John Coster
    Director, Division of Pharmacy
    Center for Medicare and Medicaid Services
  • Colin Foster at World Orphan Drug Congress USA 2016
    Colin Foster
    President and CEO
    BioBlast Pharma Ltd
    Eric Gemmen at World Orphan Drug Congress USA 2016
    Eric Gemmen
    Senior Director, Scientific Affairs, Biostatistics and Outcomes Research
    Quintiles
    Ms Gigi Hirsch at World Orphan Drug Congress USA 2016
    Ms Gigi Hirsch
    Executive Director, NEWDIGS & CBI
    Massachusetts Institute of Technology (MIT)
  • Kevin Huang at World Orphan Drug Congress USA 2016
    Kevin Huang
    President
    Chinese Organization for Rare Disorders
    Diana Macdonell at World Orphan Drug Congress USA 2016
    Diana Macdonell
    former Head, Secretariat
    Pharmaceutical Benefits Advisory Committee
    Malcolm MacKenzie at World Orphan Drug Congress USA 2016
    Malcolm MacKenzie
    SVP, Strategic Planning & Customer Insights
    Juice Pharma Worldwide
  • Mr Francois Meyer at World Orphan Drug Congress USA 2016
    Mr Francois Meyer
    Advisor To The President
    Haute Autorite De Sante
    Thomas F. Miller at World Orphan Drug Congress USA 2016
    Thomas F. Miller
    CEO
    Therabron Therapeutics
    Jeff Myers at World Orphan Drug Congress USA 2016
    Jeff Myers
    President and Chief Executive Officer
    Medicaid Health Plans of America
  • Antoun Nabhan at World Orphan Drug Congress USA 2016
    Antoun Nabhan
    Vice President, Corporate Development
    Raptor Pharmaceuticals
    Edmund Pezalla at World Orphan Drug Congress USA 2016
    Edmund Pezalla
    VP, National Medical Director of Pharmacy Policy and Strategy
    Aetna Pharmacy Management
    Antoine Regnault at World Orphan Drug Congress USA 2016
    Antoine Regnault
    Research Director, HEOR & Strategic Market Access
    Mapi Consultancy
  • Mark Rothera at World Orphan Drug Congress USA 2016
    Mark Rothera
    Chief Commercial Officer
    PTC Therapeutics
    Stanley Satz at World Orphan Drug Congress USA 2016
    Stanley Satz
    Chief Scientific Officer
    Advanced imaging projects
    Joel Schindler at World Orphan Drug Congress USA 2016
    Joel Schindler
    Senior Vice President, Healthcare Insights
    MarketVision Research
  • Mr Scott Schliebner at World Orphan Drug Congress USA 2016
    Mr Scott Schliebner
    Vice President, Scientific Affairs
    Pra Health Sciences
    Mary Seideman at World Orphan Drug Congress USA 2016
    Mary Seideman
    Partner
    Arcus Medica LLC
    Alvin Shih at World Orphan Drug Congress USA 2016
    Alvin Shih
    EVP, Head of R&D
    Retrophin
  • Deborah Sittig at World Orphan Drug Congress USA 2016
    Deborah Sittig
    President
    Soft Bones Inc
    Ms Abbe Steel at World Orphan Drug Congress USA 2016
    Ms Abbe Steel
    CEO
    HealthiVibe
    Rumen Stefanov at World Orphan Drug Congress USA 2016
    Rumen Stefanov
    Professor Director
    BAPES
  • Michael Thomas at World Orphan Drug Congress USA 2016
    Michael Thomas
    Principal
    ZS Associates
    Sheela Upadhyaya at World Orphan Drug Congress USA 2016
    Sheela Upadhyaya
    Associate Director Highly Specialised Technologies, Centre for Health Technology Evaluation
    National Institute For Health and Care Excellence
    Steve Usdin at World Orphan Drug Congress USA 2016
    Steve Usdin
    Senior Editor
    BioCentury
  • Jorge Venâncio at World Orphan Drug Congress USA 2016
    Jorge Venâncio
    Coordinator of the National Research Ethical Board (CONEP), Member
    National Health Council, Brazil
    Ms Beth White at World Orphan Drug Congress USA 2016
    Ms Beth White
    AVP, Rare Disease Commercial Development
    Pfizer
    Rashmi Gopal-Srivastava at World Orphan Drug Congress USA 2016
    Rashmi Gopal-Srivastava
    Director, Extramural Research Program, Office of the Director, Office Rare Diseases Research
    National Institutes of Health
  • Andrea Gropman at World Orphan Drug Congress USA 2016
    Andrea Gropman
    Chief, Division of Neurogenetics and Developmental Pediatrics, Professor of Neurology and Pediatrics
    Children's National Medical Center
    Mrs. Claudia Hirawat at World Orphan Drug Congress USA 2016
    Mrs. Claudia Hirawat
    Chair
    EURORDIS
    Frederick Kaskel at World Orphan Drug Congress USA 2016
    Frederick Kaskel
    Professor of Pediatrics
    Albert Einstein College of Medicine
  • Ms Virginia Llera at World Orphan Drug Congress USA 2016
    Ms Virginia Llera
    President
    Fundacion Geiser
    Charles O'Neil at World Orphan Drug Congress USA 2016
    Charles O'Neil
    Vice President, Pharmacological Sciences
    BioMarin Pharmaceutical
    Carmencita Padilla at World Orphan Drug Congress USA 2016
    Carmencita Padilla
    Chancellor, University of the Philippines, Chair
    Philippine Society for Orphan Disorders

 

SEE ALL SPEAKERS

WHO ATTENDS?

Here's a glimpse of who attended in 2015

AccessPharmaCon,LLC Aegerion Pharmaceuticals  Aetna Pharmacy Management  Alexion Pharmaceuticals  Andarix Pharmaceuticals  ArmaGen Technologies, Inc.  Ashfield Healthcare   Asklepion Pharmaceuticals LLC  Ax-S Pharma  B.D.C. Venture Capital  BioBlast Pharma Ltd  Biomarin Pharmaceutical Inc.  BioPontis Alliance for Rare Disease Brace Pharma Capital   Brazilian Federal Council of Medicine  Bristol-Myers Squibb  CatalentPharma Solutions   CatalystPharmaceutical Partners  CDER FDA  Clear Pharma  Clementia Pharmaceuticals Inc.   Clinuvel Pharmaceuticals Ltd  Dicerna Pharmaceuticals  DrugDev  EvaluatePharma Ltd   Genoa Pharmaceuticals   Genpharm  GenSight Biologics  Genzyme Corp  Giddi Pharma Co., Ltd.   Idera Pharmeceuticals  IDIS Pharma   Iptechex Pharmalicensing  Jazz Pharmaceuticals, Inc  Juice Pharma Worldwide   KBI Biopharma Inc   Lumos Pharma   M3 Pharma  Marathon Pharmaceuticals LLC   Marinus Pharmaceuticals  Momenta Pharmaceuticals Inc  Opsona Therapeutics Ltd  Optio Biopharma Solutions LLC  Orpharma  Pfizer, Inc  Pharmaceutics International In  Pharmaessentia Corp   Pharnext   Portola Pharmaceuticals , Inc.  Provectus PharmaceuticalsInc   QuayPharma  Quintiles Inc  Raptor Pharmaceuticals Corp  Reata Pharmaceuticals   Recordati S.p.A  Recursion Pharmaceuticals  Retrophin   Sanofi   Savara Pharmaceuticals  Seattle Children's Research Institute   Shire Pharmaceuticals Inc  Taiba Pharma LLC Teva  Threshold Pharmaceuticals Inc   Tolero Pharmaceuticals   Ultragenyx Pharmaceutical Inc.  Valley Fever Solutions   Vanda Pharmaceuticals Inc   Vertex Pharmaceuticals 

 

VIEW THE FULL ATTENDEE LIST

 

Every active stakeholder playing a vital role in the Orphan Drug Industry & Rare Disease Advocacy looks forward to this conference annually

Nadia Bodkin, President & CEO, EDSers United

REGISTER NOW

THIS CONFERENCE WILL SELL OUT!

Early registration and partner discounts are available.

Click below for the full list of ticket options...

 

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Our Sponsors & Exhibitors

 

Are you looking to meet CEOs, VPs and Directors working in R&D, Business Development, Regulatory Access,
Market Access, Commercial, Marketing and Brand/Product from pharma and biotech?

Then you need to join our sponsors at World Orphan Drug Congress USA 2016.

 

  • Platinum Sponsor

    Premier Research at World Orphan Drug Congress USA 2016

    Platinum Sponsor

    PTC Therapeutics at World Orphan Drug Congress USA 2016
  • Gold Sponsor

    Atlantis Healthcare at World Orphan Drug Congress USA 2016

    Gold Sponsor

    Cardinal Health Specialty Solutions at World Orphan Drug Congress USA 2016
  • Gold Sponsor

    MAPI at World Orphan Drug Congress USA 2016

    Gold Sponsor

    PPD at World Orphan Drug Congress USA 2016
  • Silver Sponsor

    Lapidus Data at World Orphan Drug Congress USA 2016

    Silver Sponsor

    Pfizer at World Orphan Drug Congress USA 2016
  • Silver Sponsor

    Betterpath at World Orphan Drug Congress USA 2016

    Silver Sponsor

    Expressa Group at World Orphan Drug Congress USA 2016
  • Silver Sponsor

    Quintiles at World Orphan Drug Congress USA 2016

    Silver Sponsor

    Red Team Associates at World Orphan Drug Congress USA 2016
  • Silver Sponsor

    Vencore Inc at World Orphan Drug Congress USA 2016

    Silver Sponsor

    ZS Associates International, Inc at World Orphan Drug Congress USA 2016
  • Associate Sponsor

    FFF Enterprises at World Orphan Drug Congress USA 2016

    Associate Sponsor

    GlaxoSmithKline at World Orphan Drug Congress USA 2016
  • Associate Sponsor

    HealthiVibe at World Orphan Drug Congress USA 2016

    Associate Sponsor

    LORA Group at World Orphan Drug Congress USA 2016
  • Associate Sponsor

    MarketVision Research at World Orphan Drug Congress USA 2016

    Associate Sponsor

    PPi Healthcare Consulting at World Orphan Drug Congress USA 2016
  • Bronze Sponsor

    Arcus Medica LLC at World Orphan Drug Congress USA 2016

    Bronze Sponsor

    Clear Pharma at World Orphan Drug Congress USA 2016
  • Bronze Sponsor

    Covance Inc at World Orphan Drug Congress USA 2016

    Bronze Sponsor

    IMS Health at World Orphan Drug Congress USA 2016
  • Bronze Sponsor

    Juice Pharma Worldwide at World Orphan Drug Congress USA 2016

    Bronze Sponsor

    Medical Marketing Economics at World Orphan Drug Congress USA 2016
  • Bronze Sponsor

    Medicom Innovation Partner a/s at World Orphan Drug Congress USA 2016

    Bronze Sponsor

    One-World, inc at World Orphan Drug Congress USA 2016
  • Bronze Sponsor

    Patient Crossroads at World Orphan Drug Congress USA 2016

    Bronze Sponsor

    PRA International at World Orphan Drug Congress USA 2016
  • Bronze Sponsor

    Worldwide Clinical Trials Holdings Inc at World Orphan Drug Congress USA 2016

    Exhibitor

    Hovione Llc at World Orphan Drug Congress USA 2016
  • Exhibitor

    Medpace Inc at World Orphan Drug Congress USA 2016

    Exhibitor

    IriSys at World Orphan Drug Congress USA 2016
  • Exhibitor

    Comradis at World Orphan Drug Congress USA 2016

    Exhibitor

    Anova Fill at World Orphan Drug Congress USA 2016
  • Exhibitor

    Pennside Partners Ltd. at World Orphan Drug Congress USA 2016

    Exhibitor

    Ergomed at World Orphan Drug Congress USA 2016
  • Exhibitor

    The Prime Medical Group at World Orphan Drug Congress USA 2016

    Exhibitor

    Cello Health at World Orphan Drug Congress USA 2016
  • Exhibitor

    APL at World Orphan Drug Congress USA 2016

    Exhibitor

    Omnicare Specialty Care Group at World Orphan Drug Congress USA 2016
  • Exhibitor

    Clinart MENA at World Orphan Drug Congress USA 2016

    Exhibitor

    Cote Orphan at World Orphan Drug Congress USA 2016
  • Exhibitor

    Dohmen Life Science Services at World Orphan Drug Congress USA 2016

    Exhibitor

    Pharmaceutics International Inc at World Orphan Drug Congress USA 2016
  • Exhibitor

    PSR-Agility at World Orphan Drug Congress USA 2016
 

JOIN THEM

Get Involved

Your customers are here continuously looking for new strategies and technologies to expedite orphan drugs to patients.

 

If you offer a solution or product in the orphan drug space, then you need to be here

 

DOWNLOAD PROSPECTUS


 
 
WODC USA A look at our US delegation

…and the US is represented…!

We are thrilled to announce the US payers that are participating at this year’s World Orphan Drug Congress USA 2016! Download the brochure to find out ...

The post …and the US is represented…! appeared first on Orphan Drugs.

WODC USA A look at our European delegation

Hear from payers from UK, Italy, France and Bulgaria

We are thrilled to announce that we are being joined by  payers from UK, Italy, France and Bulgaria at this year’s World Orphan Drug Congress USA ...

The post Hear from payers from UK, Italy, France and Bulgaria appeared first on Orphan Drugs.

WODC USA A look at our Austrailian delegation.png

Australia – confirmed for #WODC USA 2016

We are thrilled to announce that Diana Macdonell, former Head, Secretariat, Pharmaceutical Benefits Advisory Committee, Australia is confirmed to attend World Orphan Drug Congress USA 2016! The ...

The post Australia – confirmed for #WODC USA 2016 appeared first on Orphan Drugs.

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