İlkay Başak UYSAL | Senior Project Manager
INSERM

Başak Uysal (Dr, PhD) is Project Manager of the Data Service Hub within the European Rare Diseases Research Alliance (ERDERA) coordination team, where she works at the intersection of rare disease research, data infrastructures and collaborative innovation. With a background in molecular biology, bioinformatics and public health, her work focuses on making rare disease data more FAIR, interoperable and usable across organisational and national boundaries, including through federated approaches and European research infrastructures. She coordinates collaborations involving researchers, clinicians, patient organisations, research infrastructures, industry and public-sector stakeholders. As co-moderator of “ERDERA: AI for Rare Diseases: From Promise to Practice”, Başak will help guide a multidisciplinary conversation beyond the hype around AI, focusing on where it can create tangible value for rare disease research and therapeutic development, where its limitations remain, and how AI and human expertise can most effectively complement one another.