World Orphan Drug Congress Asia 2017
Biopolis @ one-north, Auditorium at Matrix,
BioPharma Asia Convention
sponsor / exhibit now
| Hong Kong
Terry Lai, age 27.
Vice chairman of Hong Kong Mucuopolysaccharidoses & Rare Genetic Diseases Mutual aid group
A rare disease patient with Pompe Disease
Diagnosed Pompe since age 14 with no medication until the Enzyme Replacement Therapy (i.e. ERT) starts on 2011.
He graduated from Hong Kong Polytechnic University with a Bachelor of Arts in Social Policy and Administration in May 2014.
Currently working in Hong Kong Alliance for Rare Diseases as business development officer.
He will be able to share the personal experience in his patient journey and describe the current work in advocating for rare diseases policy in Hong Kong.
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