RARE DISEASE DAY 2 MARCH - SPEAKERS

Dennis Akkaya, Corporate Development, myTomorrows

Mr Simone Boselli, Director, EURORDIS

Gorana Capkun, Head Rwe Enablement, Novartis Oncology

Gorana Capkun | Head Rwe Enablement | Novartis Oncology » speaking at Rare Disease Day

Jean-Philippe Combal, Co-Founder And Chief Executive Officer, Vivet Therapeutics

Jean-Philippe Combal | Co-Founder And Chief Executive Officer | Vivet Therapeutics » speaking at Rare Disease Day

Eric Michael David, Chief Executive Officer, BridgeBio-Gene Therapy

Eric Michael David | Chief Executive Officer | BridgeBio-Gene Therapy » speaking at Rare Disease Day

Matt Eagles, Head of Patient Engagement, Havas Lynx

Matt Eagles | Head of Patient Engagement | Havas Lynx » speaking at Rare Disease Day

Karen Facey, Senior Research Fellow, University of Edinburgh

Karen Facey | Senior Research Fellow | University of Edinburgh » speaking at Rare Disease Day

Geoff Fatzinger, Mging Director, CCPS UK, & Global VP of Quality, Regulatory & Strategic Services, Caligor Coghlan Pharma Services

Geoff Fatzinger | Mging Director, CCPS UK, & Global VP of Quality, Regulatory & Strategic Services | Caligor Coghlan Pharma Services » speaking at Rare Disease Day

Carlo Incerti, Operating Partner, Forbion

Carlo Incerti | Operating Partner | Forbion » speaking at Rare Disease Day

Javier Jimenez, EVP RWE & Late Phase, Syneos Health

Javier Jimenez | EVP RWE & Late Phase | Syneos Health » speaking at Rare Disease Day

Tjarda Kasteel, Country Cluster Lead Nordics & Benelux, bluebird bio

Tjarda Kasteel | Country Cluster Lead Nordics & Benelux | bluebird bio » speaking at Rare Disease Day

Robin Kenselaar, Senior Vice President And General Manager EMEA, Orchard Therapeutics

Robin Kenselaar | Senior Vice President And General Manager EMEA | Orchard Therapeutics » speaking at Rare Disease Day

Diane Kleinermans, Advisor To The Ministry Of Health And Social Affairs, Belgian Federal Government

Diane Kleinermans | Advisor To The Ministry Of Health And Social Affairs | Belgian Federal Government » speaking at Rare Disease Day

Neil Mulcock, Vice President Government Affairs And Policy, Gilead Sciences

Neil Mulcock | Vice President Government Affairs And Policy | Gilead Sciences » speaking at Rare Disease Day

Tobias Polak, Lead Real-World Data, myTomorrows

Tobias Polak | Lead Real-World Data | myTomorrows » speaking at Rare Disease Day

Frederic Revah, Chief Executive Officer, Genethon

Frederic Revah | Chief Executive Officer | Genethon » speaking at Rare Disease Day

Christopher M de M Rudolf, CEO, volv global

Christopher M de M Rudolf | CEO | volv global » speaking at Rare Disease Day

David Schwicker, Principal, Founder, ORPHA Strategy Consulting

David Schwicker | Principal, Founder | ORPHA Strategy Consulting » speaking at Rare Disease Day

Sheela Upadhyaya, Associate Director Highly Specialised Technologies, National Institute for Health and Care Excellence

Sheela Upadhyaya | Associate Director Highly Specialised Technologies | National Institute for Health and Care Excellence » speaking at Rare Disease Day

Sheela Upadhyaya, Special adviser, FIPRA

Sheela Upadhyaya | Special adviser | FIPRA » speaking at Rare Disease Day

Martine Zimmermann, Global Head Of Regulatory Affairs, Alexion Pharmaceuticals

Rare Disease Day

 

WODC’s Rare Disease Day is a one-day event as part of the World Orphan Drug Congress

 

 

Events

Rare Disease Day


World Orphan Drug Congress

 

 

Contact us


To sponsor or exhibit:
Michael Hodge

Michael.hodge@terrapinn.com


To speak:
Wing-Yun Cheung

wing-yun.cheung@terrapinn.com


Nadia Konneh

nadia.konneh@terrapinn.com