Tuesday 2 March - 9:00 - 17:30 CET



Join us for a one-day event featuring:


Patient innovative Technology

One year one from COVID-19, what technologies has shaped the way the RD community has continued to persevere?

o Artificial intelligence, patient platforms, remote monitoring, wearables, Telehealth & digital health

o How to make RD patients more self-sufficient, including use of digital technology

o How do we collect, store and translate this data to compliment drug approval?


Real World Evidence

Continuing from the huge attention gained from November

o Session will involve HTA, payers, industry and patients


Gene Therapy

Key panels on “improving clinical trial design,” “overcoming the hurdles that are impacting patient access to gene therapies” and “ensuring commercial readiness”.



Rare Disease Day


WODC’s Rare Disease Day is a one-day event as part of the World Orphan Drug Congress




Rare Disease Day

World Orphan Drug Congress



Contact us

To sponsor or exhibit:
Michael Hodge


To speak:
Wing-Yun Cheung


Nadia Konneh