PRA Rare Disease Day - 26th February

Clinical Trial Innovations & Diversity and Inclusion in Research

 

Rare Disease Day; PRAHealthSciences;  World Orphan Drug Congress

 

PRA’s Center for Rare Diseases looks forward to continuing our annual celebration of World Rare Disease Day with you on February 26, 2021.

 

Due to the ongoing impact of COVID-19, our event will be 100% virtual and free to everyone to ensure the safety of all attendees as we continue to raise awareness for the Rare Community. Please join us and other rare disease experts and patient advocates for an interactive event featuring presentations and open discussions on rare disease research efforts.

 

CLINICAL TRIAL INNOVATIONS & DIVERSITY AND INCLUSION IN RESEARCH

 

10:00 AM – 10:15 AM EST :  Welcome

10:15 AM – 11:35 AM EST :  Trial Innovations & Diversity and Inclusion in Clinical Research – Presentations with Moderated Panel Discussion and Q&A

11:35 AM – 11:50 AM EST :  Break & Networking

11:50 AM – 12:45 PM EST :  Roll-out of Innovative Patient-Centric Trial Development Toolkit – Presentation and Q&A

12:45 PM – 1:00 PM EST :  Final Thoughts & Closing
 
 
MEET OUR GUEST SPEAKERS
 

Jocelyn Ashford

Global Patient Advocacy

Eidos Therapeutics

Terry Jo Bichell  

Founder/Director 

COMBINEDBrain

Marcelo Vaz, MD

Marcelo Vaz

Director of Medical Affairs, Internal Medicine / Pulmonology

PRA Health Sciences

Laura Iliescu (Quinn)

Laura Iliescu (Quinn)  

Manager of Patient Advocacy and Engagement  

PRA Health Sciences

 

Scott Schliebner 

Senior VP Center for Rare Diseases 

PRA Health Sciences

Jessica Wessel

Jessica Wessel  

Clinical Science Liaison    

PRA Health Sciences

Kendall Davis  

Manager of Patient Advocacy and Engagement

PRA Health Sciences

Kent Thoelke

Kent Thoelke  

Chief Scientific Officer

PRA Health Sciences

 

Amy Raymond

Amy Raymond 

PhD, PMP, Director of Therapeutic Expertise

Center for Rare Diseases

 

 
 
JOIN THE CONVERSATION AND REGISTER FOR YOUR COMPLIMENTARY PASS BELOW

 

  Rare Disease Day; PRAHealthSciences;  World Orphan Drug Congress

 
 
  CONTACT US
 
Marc Rhys-Evans

Rare Disease Day

 

WODC’s Rare Disease Day is a one-day event as part of the World Orphan Drug Congress

 

 

Events

Rare Disease Day


World Orphan Drug Congress

 

 

Contact us


To sponsor or exhibit:
Michael Hodge

Michael.hodge@terrapinn.com


To speak:
Wing-Yun Cheung

wing-yun.cheung@terrapinn.com


Nadia Konneh

nadia.konneh@terrapinn.com