Yann Le Cam | Strategy Advisor
VOZ Advisors

Day 2 @ 15:00

Closing Keynote Panel: Pushing Boundaries for the future – What’s next for Rare?

-      Assessing a policy roadmap towards an EU and Global Action Plan for Rare Diseases (GAPRD)

-      How will the WHO UN Resolution impact rare diseases in 2026 and what progress has been made?

-      How can regions come together to harmonise, collaborate and put patients’ needs at the forefront of decision making?

Moderator: Yann Le Cam, Strategy Advisor, VOZ Advisors

Durhane Wong-Rieger, President, Chief Executive Officer, Canadian Organisation for Rare Disorder & Rare Diseases International

Alexis Arzimanoglou, Coordinator of the European Reference Network for Rare and Complex Epilepsies, EpiCARE

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Alexis Arzimanoglou / Closing Keynote Panel: Pushing Boundaries for the future – What’s next for Rare?

Alexis Arzimanoglou, Coordinator of the European Reference Network for Rare and Complex Epilepsies,
EpiCARE

Professor Alexis Arzimanoglou is, since 2019, the elected Coordinator of the European Reference Network for Rare and Complex Epilepsies, ERN EpiCARE. Since October 2023, he is also the Director of the Epilepsy Program at the Barcelona Children's Hospital San Juan de Dios, Universitat de...

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Daria Julkowska, Head of Strategy & Partnerships in Health, ERDERA - INSERM