WHAT IS THE WORLD ORPHAN DRUG CONGRESS?

STRATEGIC CONFERENCE

Agenda at World Orphan Drug Congress

Through strategic keynote plenaries, themed tracks and dedicated networking sessions, you have the chance to really tailor the event to the needs of your day-to-day role.

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SOLUTION PROVIDER EXHIBITION

Exhibit at World Orphan Drug Congress

What a great opportunity to debut new solutions, improve your brand awareness, meet new prospective clients and maintain  existing relationships.

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EXCELLENT NETWORKING

Network at World Orphan Drug Congress

Over 350 of your peers in one room as well as extended networking breaks and an evening networking drinks reception to meet attendees in a more informal setting.

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PATIENT ADVOCACY ZONE

Patient Advocacy at World Orphan Drug Congress

Patient Advocacy Groups can present and discuss the work they are doing in their communities and with industry, to raise awareness and build relationships.

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Together with:

"It is an important meeting that sheds light on the value patient advocates bring to the development process!"

Global Medicines Development Lead - Rare Diseases, Pfizer

2016 ADVISORY BOARD

 

Yann Le Cam, Chief Executive Officer, EURORDIS
Yann Le Cam , Chief Executive Officer, EURORDIS

Dr Ségolène Aymé, Founder of Orphanet, Emeritus Research Director, INSERM
Dr Ségolène Aymé , Founder of Orphanet, Emeritus Research Director, INSERM

Dr Bruno Sepodes, Chair of COMP, EMA
Dr Bruno Sepodes , Chair of COMP, EMA

Alastair Kent, Director, Genetic Alliance UK
Alastair Kent , Director, Genetic Alliance UK

Nicole Boice, Founder & CEO, Global Genes
Nicole Boice , Founder & CEO, Global Genes

 

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"The information provided was really helpful, I will use it in my daily work. The networking was also great!" 

 

Director, Value Evidence Lead Rare Diseases, GSK

Who Attends Orphan Drugs?

 

AANORA Actelion Pharma Ltd Action Duchenne Addmedica Adelphi Values AGSD (UK) AirLiquide AKU Society Alcimed Alexion Pharmaceuticals Allaysis LLC Alliance Life Sciences ALS Liga Belgi Alstrom Syndrome U.K. AMICULUM Anticancer Fund AOP Orphan Pharmaceuticals   AG ArmaGen Technologies, Inc. Atacsia a Fi / Ataxia and Me Ataxia UK aTyr aTyr Pharma  BioBlast Pharma Ltd Biopontis Alliance Blackswan Foundation Brace Pharma Capital Caligor Rx, Inc. Calypso Biotech SA  Capsugel Celgene Centogene AG Charity Association Neurohereditary Diseases Chiesi Farmaceutici Spa Clear Pharma Clinart MENA Clinerion Clinigen Global Access Programs Comradis Concenter BioPharma/Silkim Ltd. Cote Orphan Coulter Partners   Covance UK CRF Health CureDuchenne Cures Within Reach Cydan Development  Cytokinetics Daiichi Sankyo Europe GmbH Dipharma SA Diurnal Limited Dravet Syndrome Foundation Durbin E.C.R.I.N. ECRIN-ERIC ELA Suisse Emmaus Life Sciences, Inc Ergomed EspeRare Euromedica EuropaBio European Huntington's Disease Network EURORDIS  Euticals Spa EvaluatePharma Ltd Evidera F.Hoffmann-La Roche Ltd. Facio Therapies BV Federal Joint Committee F Hoffmann-La Roche French Association Against Friedreich Ataxia Gaucher Disease Russia Genesis Pharma Genetic Alliance U.K. Genkyotex Innovation Sas Genpharm Genzyme Europe BV Gerson Lehrman Group Giddi Pharma GlaxoSmithKline  Greenovation Biotech GmbH Grünenthal GmbH GSK Rare Diseases GW Pharmaceuticals   Haute Autorite De Sante Horizon Pharma Inc I.M.S. Health Idis Managed Access Idis Pharma  Imagine - Institut des Maladies génétiques IMS Health INC Research Index Ventures INSERM  Lysogene M3 Pharma S/A Mapi Consultancy Midas Pharma GmbH Minoryx Therapeutics   MPS Society N.O.R.D. National Institute for Health and Care Excellence National Institutes of Biomedical Innovation, Health and Nutrition National organisation for rare diseases of Serbia  NephCure Kidney International Niemann-Pick UK Novartis

 

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Key Speakers at Orphan Drugs 2016

 

  • Mr Yann Le Cam at World Orphan Drug Congress
    Mr Yann Le Cam
    Chief Executive Officer
    EURORDIS
    Segolene Ayme at World Orphan Drug Congress
    Segolene Ayme
    Founder of Orphanet & Emeritus Research Director
    Inserm
    Kristina Larsson at World Orphan Drug Congress
    Kristina Larsson
    Head of Orphan Drugs
    E.M.A.
  • Klaus-Dieter Langner at World Orphan Drug Congress
    Klaus-Dieter Langner
    CSO
    Grunenthal
    Sheela Upadhyaya at World Orphan Drug Congress
    Sheela Upadhyaya
    Assoc. Director Highly Specialised Technologies
    National Institute For Health and Care Excellence
    De Paul Strijbos at World Orphan Drug Congress
    De Paul Strijbos
    Global Head Rare Diseases Clinical Development
    F. Hoffmann-La Roche
  • Ms Ruxandra Draghia Akli at World Orphan Drug Congress
    Ms Ruxandra Draghia Akli
    Deputy Director General
    European Commission
    Mr Francois Meyer at World Orphan Drug Congress
    Mr Francois Meyer
    Advisor To The President
    Haute Autorite De Sante
    Vinciane Pirard at World Orphan Drug Congress
    Vinciane Pirard
    Senior Director Public Affairs Europe
    Genzyme Europe B.V
  • Michael Zaiac at World Orphan Drug Congress
    Michael Zaiac
    Head of Medical Affairs
    Celgene Gmbh
    Kristin Svanquist at World Orphan Drug Congress
    Kristin Svanquist
    Head of unit for HTA and reimbursement
    Norwegian Medicines Agency
    Kateřina Kopečková at World Orphan Drug Congress
    Kateřina Kopečková
    Senior Medical Oncologist
    University Hospital of Motol
  • Ms Gemma Gatta at World Orphan Drug Congress
    Ms Gemma Gatta
    Head of Unit at S.S. Evaluative Epidemiology
    Italian Institute of Tumors
    Ms Stephanie Okey at World Orphan Drug Congress
    Ms Stephanie Okey
    Senior Vice President Head of North America
    Genzyme, A Sanofi Company
    Robert Bezar at World Orphan Drug Congress
    Robert Bezar
    Director Medical, SMA Lead Europe and Canada
    Biogen International GmbH

 

SEE ALL 2016 SPEAKERS

Put your company at the forefront of the orphan drug industry

 

Being Europe’s largest Orphan Drug Congress, this event provides a platform for you to showcase your thought leadership and expertise to pharma, biotechs, payers, regulators and patient advocates.

 

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A GLOBAL ORPHAN DRUGS EVENT

We're excited to be welcoming attendees from all over the globe for this year's congress.

Share, debate and engage with an international audience and take back valuable insights to your company.

Why you should sponsor the orphan drugs congress

 

Why get involved?

Find out more about how you can promote your products at the orphan drug sector’s premier event by downloading the sponsorship brochure today. 
 

"WODC is the key annual congress for anybody working in the rare disease arena.”
Oxford PharmaGenesis

Why sponsor?

  • Speak to a room full of orphan drug experts

  • Host a roundtable and meet your customers

  • Let us organise 1-2-1 meetings for you

  • Let us generate sales leads pre-event

  • Take a private meeting room

Why exhibit?

  • Show off your latest products & innovations

  • Promote new services

  • Educate your target market

  • Generate new sales leads

  • Raise brand profile 

 

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Orphan Drugs Sponsors & Exhibitors

 

  • Partner

    GlaxoSmithKline at World Orphan Drug Congress

    Platinum Sponsor

    PPD at World Orphan Drug Congress

    Gold Sponsor

    INC Research at World Orphan Drug Congress
  • Gold Sponsor

    MAPI at World Orphan Drug Congress

    Gold Sponsor

    PRA Health Sciences at World Orphan Drug Congress

    Gold Sponsor

    Premier Research at World Orphan Drug Congress
  • Gold Sponsor

    Quintiles at World Orphan Drug Congress

    Gold Sponsor

    SYMPTOMA at World Orphan Drug Congress

    Silver Sponsor

    Medical Marketing Economics at World Orphan Drug Congress
  • Bronze Sponsor

    BluePrint Orphan at World Orphan Drug Congress

    Bronze Sponsor

    Durbin at World Orphan Drug Congress

    Bronze Sponsor

    Komtur Polska sp. z.o.o at World Orphan Drug Congress
  • Bronze Sponsor

    Perkinelmer at World Orphan Drug Congress

    Bronze Sponsor

    SKC Beratungsgesellschaft at World Orphan Drug Congress

    Bronze Sponsor

    SynteractHCR at World Orphan Drug Congress
  • Pitch & Partner Sponsor

    Facio Therapies BV at World Orphan Drug Congress

    Pitch & Partner Sponsor

    Mezzion Phama at World Orphan Drug Congress

    Exhibitor

    APL at World Orphan Drug Congress
  • Exhibitor

    Cello Health at World Orphan Drug Congress

    Exhibitor

    Comradis® at World Orphan Drug Congress

    Exhibitor

    Cote Orphan at World Orphan Drug Congress
  • Exhibitor

    Dolon at World Orphan Drug Congress

    Exhibitor

    Ergomed at World Orphan Drug Congress

    Exhibitor

    Orphan Reach at World Orphan Drug Congress
  • Exhibitor

    Oxford PharmaGenesis at World Orphan Drug Congress

    Exhibitor

    PSR – Agility at World Orphan Drug Congress

    Exhibitor

    WEP Clinical at World Orphan Drug Congress
  • Exhibitor

    World Courier at World Orphan Drug Congress

 

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