The World's Largest Rare Disease Event


The World Orphan Drug Congress is the largest and most established orphan drug & rare disease meeting of its kind across the globe.

From cell and gene therapy, genetic testing, and market access, to real world evidence, this one meeting covers the whole orphan drugs value chain where science, government and manufacturers all come together to create groundbreaking progress.

 
Conference

Covering cell & gene therapy, genetic testing, market access, real world evidence, orphan drugs policy and much more
 

Exhibition

130+ leading solution providers from across the globe, featuring new ways of thinking and novel partnerships to generate solutions.
 

APPLY TO SPONSOR/EXHIBIT

Networking

Networking is at the heart of World Orphan Drug Congress. Our congress allows you to connect directly with thousands of pharma experts across 3 days of built-in 1-2-1 networking  

GET YOUR TICKET NOW

Early Bird Offer Save €2,100

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The Start-to-Finish of Orphan Drugs

From regulation and policy to global pricing and gene therapy

Cell & Gene Therapies
Genetic Testing
Gene Editing
Partnering & Investment 
Global Market Access
Expanded Access Programs
Real World Evidence
Global Patient Advocacy
Value Based Pricing & Reimbursement
Epidemiology & Forecasting
Orphan Drugs Policy
Gene Therapy Development
Clinical Trials
Payers, HTA and Pricing
Manufacture

In Partnership With

Beacon World Orphan Drug Congress 2023 Supporting PartnerDravet World Orphan Drug Congress 2023 Supporting PartnerEURORDIS World Orphan Drug Congress 2023 Supporting PartnerERICA World Orphan Drug Congress 2023 Supporting PartnerCataloniaBio & HealthTech World Vaccine Congress Europe 2023 Supporting PartnerEuropaBio World Orphan Drug Congress 2023 Supporting PartnerBeacon World Orphan Drug Congress 2023 Supporting PartnerDravet World Orphan Drug Congress 2023 Supporting PartnerEURORDIS World Orphan Drug Congress 2023 Supporting PartnerERICA World Orphan Drug Congress 2023 Supporting PartnerCataloniaBio & HealthTech World Vaccine Congress Europe 2023 Supporting PartnerEuropaBio World Orphan Drug Congress 2023 Supporting Partner

Advisory Board

 

2025 Sponsors and Exhibitors

 

  • Gold Sponsor

    Chiesi Global Rare Diseases at World Orphan Drug Congress 2025

    Gold Sponsor

    EVERSANA at World Orphan Drug Congress 2025
  • Gold Sponsor

    Ipsen at World Orphan Drug Congress 2025

    Gold Sponsor

    Parexel at World Orphan Drug Congress 2025
  • Gold Sponsor

    PrimeVigilance at World Orphan Drug Congress 2025

    Gold Sponsor

    Takeda at World Orphan Drug Congress 2025
  • Gold Sponsor

    Volv Global at World Orphan Drug Congress 2025

    Gold Sponsor

    Worldwide Clinical Trials at World Orphan Drug Congress 2025
  • Silver Sponsor

    Allucent at World Orphan Drug Congress 2025

    Silver Sponsor

    Initiate Consultancy at World Orphan Drug Congress 2025
  • Silver Sponsor

    Premier Research at World Orphan Drug Congress 2025

    Silver Sponsor

    WEP Clinical at World Orphan Drug Congress 2025
  • Bronze Sponsor

    Alira Health at World Orphan Drug Congress 2025

    Bronze Sponsor

    BRCR Global at World Orphan Drug Congress 2025
  • Bronze Sponsor

    Costello Medical Consulting Ltd at World Orphan Drug Congress 2025

    Bronze Sponsor

    GeneScape at World Orphan Drug Congress 2025
  • Bronze Sponsor

    Kintiga at World Orphan Drug Congress 2025

    Associate

    Azafaros at World Orphan Drug Congress 2025
  • Associate

    EveryONE Medicines at World Orphan Drug Congress 2025

    Exhibitor

    IDEA Regulatory at World Orphan Drug Congress 2025
  • Exhibitor

    Medscape Education Global at World Orphan Drug Congress 2025

    Exhibitor

    Aixial inc at World Orphan Drug Congress 2025
  • Exhibitor

    Ataxia of Charlevoix-Saguenay Foundation at World Orphan Drug Congress 2025

    Exhibitor

    BAP Pharma at World Orphan Drug Congress 2025
  • Exhibitor & Supporting Partner

    Dravet Syndrome Foundation at World Orphan Drug Congress 2025

    Exhibitor

    Envoya Inc. at World Orphan Drug Congress 2025
  • Exhibitor & Supporting Partner

    ERN SKIN at World Orphan Drug Congress 2025

    Exhibitor

    GNH Pharmaceuticals USA at World Orphan Drug Congress 2025
  • Exhibitor & Supporting Partner

    Inserm at World Orphan Drug Congress 2025

    Exhibitor & Supporting Partner

    IRDiRC at World Orphan Drug Congress 2025
  • Supporting Partner

    Kidney Research UK at World Orphan Drug Congress 2025

    Exhibitor

    NeuroCores, Inc. at World Orphan Drug Congress 2025
  • Exhibitor

    Onyx Scientific at World Orphan Drug Congress 2025

    Exhibitor

    OPEN Health at World Orphan Drug Congress 2025
  • Exhibitor

    QuickSTAT A Kuehne + Nagel Company at World Orphan Drug Congress 2025

    Exhibitor & Supporting Partner

    RARE Revolution at World Orphan Drug Congress 2025
  • Startup

    Netabolics at World Orphan Drug Congress 2025

 

“Always a great conference, where key players in the rare disease field come together and share ideas, and more importantly, agree on some concrete actions“ – IPSEN
“The leading congress that addresses the subjects most important to patients with rare diseases and treatments by orphan drugs.”
- Alexion, AstraZeneca Rare Disease
“Great access to important colleagues, ability to connect or book time slots on Terrapinn Events App was great, varied sessions and good opportunities to network outside of the sessions”
- Metabolic Support UK
“Great networking opportunities, great panels and discussions!”
- EURORDIS
“Good mix of plenaries and workshops, lots of meeting opportunities, relevant topic selection, very friendly and supportive organizer staff”
- Cerner Enviza
“Excellent organization, very interesting sessions and great networking opportunities.”
- GenCC GmbH

 

Join the global rare disease community
in Amsterdam

27 - 29 October 2025
 

Get involved at World Orphan Drug Congress Europe 2025

 

 

TO SPONSOR


Kieran Duffin

Kieran.Duffin@terrapinn.com

 

Adam Mayar
Adam.Mayar@terrapinn.com

 

TO SPEAK


Abdu Kauroo
Abdu.Kauroo@terrapinn.com

 

MARKETING & PRESS


Jasper Cameron

Jasper.Cameron@terrapinn.com

 

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