World Orphan Drug Congress USA 2018
community download

World Orphan Drug Congress USA MaxifyLife White Paper

 

SUPPORT BEYOND THERAPEUTIC PRODUCTS 

THE HOLISTIC TOLL LEVIED UPON RARE DISEASE PATIENTS, CAREGIVERS, AND FAMILIES

 

To provide insight on the many burdens patients, caregivers, and families must manage when living with a rare diagnosis; while educating the broader rare disease ecosystem regarding the needs necessary to maintain and/or improve quality of life.

 

Paper Insights & Learnings - The ?nancial implications of rare disease that go beyond a?ording treatment
- Addressing lifelong habits and the changes necessary to managing a rare condition
- The family dynamic and living with rare challenges from childhood to adulthood
• The implications of living with a rare condition has on quality of life
• How rare disease knows no limits and e?ects each member of the family
- Social and Psychological Implications of rare disease
• How patients manage the holistic toll of living with a rare condition
- The role stakeholders play in assisting patients overcome routine challenges born by a rare disease

 

To learn more about MaxifyLife, visit their website.

Some quick details

Email Address:*
First name:*
Last name:*
Job Title:*
Company:*
Industry:
Country:*

Remember my details Information

Information
Remember my details
We place a 'cookie' on your computer so next time you visit us you don't need to fill in all these details


Privacy statement »
Manage your email preferences »
 

You will be emailed the document as an attachment (8,635Kb in size)