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Mapi Workshop Agenda

On April 22nd, at World Orphan Drug Congress USA Mapi will be leading a 4-hour workshop offering insight into  Overcoming challenges in Rare Disease Health Research and Orphan Drug Program commercialization.

Presenters include:

  • Kelly Franchetti,  RN, CCRN, CEN, Executive Director, Global Patients Insights and Engagement
  • Carla Dias-Barbosa,  MSc, Associate Research Director, Mapi HEOR & Strategic Market Access
  • Charles Makin,  BSPharm, MS, MBA, MM, Vice President, HEOR and Strategic Market Access
  • Ron Christensen,  MD, Chief Medical Officer
  • Patricia Anderson,  Vice President, Regulatory Services

Topics include:

  • The Process of Understanding the Person with the Indication
  • Patient Reported Outcomes Strategy
  • Market Access Challenges for Rare Diseases
  • Orphan Drug and Rare Diseases - Requirements for Real World Data
  • Regulatory Hurdles Orphan Drug - Are They Increasing

Download the workshop brochure to find out more about what Mapi will be discussing.

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