community download

What Makes Online Communities in Rare Diseases Special?

What are the dynamics of online rare disease communities that make them different from their non-rare disease counterparts? Is it the variation in size? Does it depend on the condition? Or is the makeup of the respective communities intrinsically different?

In general, any online community is driven by a shared interest in a specific topic. Thriving communities can be found for all sorts of interests, whether it’s people who are passionate about orchids, or people who retain a fascination for a particular model of car.

Communities remain active because individuals value the benefits they offer: shared information, an opportunity to fit in, and a sense of empowerment in common pursuits. Smaller communities tend to be more active than larger communities; it’s easier to make personal connections with other members.

Download this whitepaper from JUICE Pharma Worldwide to find out more about why online communities in rare disease are special. 

Some quick details

Email Address:*
First name:*
Last name:*
Job Title:*
Company:*
Industry:
Country:*

Remember my details Information

Information
Remember my details
We place a 'cookie' on your computer so next time you visit us you don't need to fill in all these details


Privacy statement »
Manage your email preferences »
 

You will be emailed the document as an attachment (1,991Kb in size)