Diagnosed with a rare disease? Google it. Receive a mess of returns, or perhaps nothing. Those living with a rare condition and their families face numerous frustrations and have a multitude of unmet needs. The state of the internet in helping them on their journey leaves a lot to be desired. It may take them years to get an accurate diagnosis; physicians who understand their symptoms are few and far between; and understandable, accurate information is hard to find. Learn more about how deeply these unmet need affects families and what types of successful solutions are available. Download the whitepaper here >> Interested in learning more? Visit Rare Life Solutions at Booth 408 at World Orphan Drug Congress USA, April 19-21 at the Washington Marriott Wardman Park in Washington, DC.
Diagnosed with a rare disease? Google it. Receive a mess of returns, or perhaps nothing.
Those living with a rare condition and their families face numerous frustrations and have a multitude of unmet needs. The state of the internet in helping them on their journey leaves a lot to be desired. It may take them years to get an accurate diagnosis; physicians who understand their symptoms are few and far between; and understandable, accurate information is hard to find.
Learn more about how deeply these unmet need affects families and what types of successful solutions are available.
Download the whitepaper here >>
Interested in learning more? Visit Rare Life Solutions at Booth 408 at World Orphan Drug Congress USA, April 19-21 at the Washington Marriott Wardman Park in Washington, DC.
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