World Orphan Drug Congress USA 2017
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[[Whitepaper]] In the internet we trust? - Discerning quality rare disease information

Diagnosed with a rare disease?  Google it.  Receive a mess of returns, or perhaps nothing.

Those living with a rare condition and their families face numerous frustrations and have a multitude of unmet needs. The state of the internet in helping them on their journey leaves a lot to be desired. It may take them years to get an accurate diagnosis; physicians who understand their symptoms are few and far between; and understandable, accurate information is hard to find. 

Learn more about how deeply these unmet need affects families and what types of successful solutions are available.

Download the whitepaper here >> 

Interested in learning more? Visit Rare Life Solutions at Booth 408 at World Orphan Drug Congress USA, April 19-21 at the Washington Marriott Wardman Park in Washington, DC. 

 

 

 

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