European Reference Network for Rare Endocrine Conditions (Endo-ERN)
The objective of Endo-ERN and all European Reference Networks (ERNs) is to ensure that it is the medical knowledge and expertise that travel, rather than the patients.
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 countries that offer access to clinical experts for patient rare endocrine conditions.
Endo-ERN offers:
· Secure virtual consultations
· Rare disease registries (EuRRECa)
· Patient information endorsed by European Patient Advocacy Groups (ePAGs)
· Rare disease research
· Training & Education