Peter Fish | Chief Executive Officer
Mendelian

Peter Fish is a medical doctor with a degree in Human Genetics and an MBA. He has previously founded and managed a number of tech, healthtech and biotech companies and organisations, many of which focused on scalable mechanisms for delivering stratified and personalised medicine. He joined Mendelian as an early investor and assisted the founders from an early stage before accepting the CEO role in March 2022.

Appearances:

Pre-Congress Workshops - Tuesday 22nd October @ 14:00

WORKSHOP: Reducing the Burden of Rare Diseases Across The Patient Journey [OFFSITE]

People living with rare diseases face distinct and significant challenges that arise from the infrequency of their medical conditions, such as a long diagnostic journey, inadequate clinical management, and limited access to effective treatments. The burden of rare diseases on patients, their carers and families, healthcare systems, and society overall, deserves greater visibility and recognition. Addressing these societal challenges requires a multifaceted approach involving stakeholders across the healthcare system, government agencies, research institutions, industry, and patient advocacy organizations.

This discussion will examine the patient perspective and the burdens faced explore what is needed to speed up and improve the patient journey of Europeans living with rare diseases, with clear recommendations for health systems and policymakers.

The session will be broken into two parts:

Part 1 – The Patient Perspective: Patient experiences along the rare disease 'journey'

Part II – 'We all have a role' – multi-stakeholder solutions across the rare disease 'journey' from industry, R&D, AI, HTA and health systems.

Moderator: Neil Bertelsen, Patient Engagement Specialist, Neil Bertelsen Consulting

Natascha Sippel-Schönborn, Managing direktor, MFSH e.V.

Bob Stevens, Group CEO, MPS Society