Monica Ferrie | Chief Executive
Genetic Support Network of Victoria

Monica Ferrie, Chief Executive, Genetic Support Network of Victoria

Monica has worked across the community, health, education, business and government sectors. Monica is a Council Member of Rare Disease International and currently serving the genetic, undiagnosed and rare disease communities as the Chief Executive, Genetic Support Network of Victoria (GSNV). She is also one of the founding members of GUARD Collaborative Australia, and Treasurer of the Asia Pacific Alliance of Rare Disease Organisations (APARDO). Leading in patient advocacy, presenting nationally and internationally and bringing experience of a range of senior leadership and strategic roles in Government, education, the private sector and international projects. Monica is an Honorary Fellow of University of Melbourne and actively represents the community on many local, national and international committees, industry and advisory groups, research projects, advocacy and policy efforts and Boards

Appearances:



Day 1 - Wednesday 23 October @ 16:40

Panel: Evidence Assessment in rare. Why do we need a change in Paradigm. The work of HTAi RDIG

Session led by: sanofi

Day 3 - Friday 25th October @ 10:40

Equitable genomic data principles: leveraging NGS technologies for global health equity

Day 3 - Friday 25th October @ 13:30

Panel: Collecting Real World Data that is useable as RWE

-Challenges of standardization and generalizability, validity, reliability and analysis

last published: 13/Oct/24 14:15 GMT

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