Monica has worked across the community, health, education, business and government sectors. Monica is a Council Member of Rare Disease International and currently serving the genetic, undiagnosed and rare disease communities as the Chief Executive, Genetic Support Network of Victoria (GSNV). She is also one of the founding members of GUARD Collaborative Australia, and Treasurer of the Asia Pacific Alliance of Rare Disease Organisations (APARDO). Leading in patient advocacy, presenting nationally and internationally and bringing experience of a range of senior leadership and strategic roles in Government, education, the private sector and international projects. Monica is an Honorary Fellow of University of Melbourne and actively represents the community on many local, national and international committees, industry and advisory groups, research projects, advocacy and policy efforts and Boards
-Challenges of standardization and generalizability, validity, reliability and analysis