Joana Claverol | Clinical Research Director
Barcelona Children's Hospital Sant Joan de Deu, Research foundation
Joana Claverol , is the Clinical Research Director at Barcelona Children’s Hospital Sant Joan de Déu, Research Foundation, Spain, where she leads the clinical trials office since 2012 and the Patients engagement in research area since 2015. The Clinical Research Unit is a reference unit for pediatric patients nationally and internationally, specializing in innovative treatments for highly complex patients with rare pediatric diseases. She has more than 13 years of experience in medical and clinical research in the pharmaceutical and biotechnology industry, with special knowledge and experience in drug development and clinical trial design, and all regulatory and methodological aspects related to clinical research. She holds a postgraduate in Senior Management Program of Health Institutions by IESE Business School, a Master in Pharmaceutical Marketing by Universitat Pompeu Fabra, a Master of clinical trials at Universitat de Barcelona and a BS Degree in Biological Sciences by Universitat Autonoma de Barcelona.
Appearances:
Day 2 - Thursday 24 October @ 12:10
Unique Challenges in Recruiting Patients for Rare Indication Pediatric Studies: Overcoming Difficulties through a Site and CRO Perspective
Recruiting patients for rare pediatric studies presents unique challenges that require specialized strategies. This session will delve into the complexities of patient recruitment in rare pediatric populations from a CRO perspective as well a world leading pediatric clinical site: Sant Joan de Déu. Insights and lessons will include:
-Effective pediatric rare disease recruitment strategies
-Concierge level patient support to reduce patient burden
-Embedding Clinical Research into a hospitals core strategy
-Holistic approach to patient and family care
-Aligning Government Policy to help with recruitment
-Utilization of real-world protocol simulations to avoid costly protocol amendments.
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