Iolanda Arbiol | Founder
Fundació Dr. Torrent-Farnell
Iolanda Arbiol, a graduate in International Trade and Protocol and Institutional Relations, with a Master’s degree in Bioethics and Law from the University of Barcelona, is the co-founder and current director of Fundació Dr. Torrent-Farnell, an organization dedicated to improving access to education, information, and treatments for people with rare, chronic, and vulnerable diseases. Her work focuses on empowering patients and promoting their active participation in healthcare decision-making.
Under her leadership, the Platform has carried out significant studies, including the Study on the Needs of Catalan People with Rare Diseases, presented in February 2023.
Appearances:
Day 1 - Wednesday 23 October @ 11:30
Working Group 5: Enhancing Patient Involvement in HTAs: Practical Strategies for Stakeholder Collaboration
This working group aims to encourage collaboration among stakeholders in the HTA process to improve patient outcomes through enhanced engagement strategies. We will explore key issues surrounding patient involvement in HTAs, with a focus on how pharmaceutical companies can actively contribute to this critical activity.
Key discussion areas:
- Implications of the new HTA Regulation in the EU, effective January 2025, and how they affect patient participation
- Best practices and ethical considerations in partnerships between pharmaceutical companies and patient advocacy organizations
- Strategies for ensuring that patients receive clear and understandable information about pharmaceutical products during the HTA process
- Patient training programs to enhance their participation in HTAs while maintaining ethical boundaries
If you are a stakeholder in the healthcare ecosystem, we invite you to contribute your perspectives and engage in this crucial conversation.
Created by
Terrapinn is proud to be a member of isla.
Working together to build sustainable events