Begonya Nafria Escalera | Patient Advocacy Manager
Sant Joan de Déu Children's Hospital

Begonya Nafria Escalera, Patient Advocacy Manager, Sant Joan de Déu Children's Hospital

Ms. Begonya Nafría (F), MsC, Patient Advocacy Manager at Institut de Recerca Sant Joan de Déu and Fundació Sant Joan de Déu. Experience in coordinating and managing projects in clinical research on rare diseases. Coordinator of YPAG (Young Persons’ Advisory Group)-KIDS Barcelona and RareCommons platform. Ms. Nafría is the Coordinator of eYPAGnet (European YPAG network – accredited by EnprEMA), Member of the Course Committee of Eupati (European Patients' Academy on Therapeutic Innovation) and Chair of the Educational Committee of ICAN (International Children Advisory Network).

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