Rare Patient Voice, LLC


Rare Patient Voice, LLC was founded in 2013 by industry veteran Wes Michael to provide patients and family caregivers a chance to be heard through taking part in all types of research.

RPV was built on a foundation of direct connections and word of mouth. We have assembled a panel of 100,000+ through attending patient meetings and conferences, by working with advocacy groups through a robust referral program, and through social media. We cover 1,400+ conditions, both rare and non-rare, and span the United States, Canada, United Kingdom, Italy, Germany, France, Spain, Australia, and New Zealand. 

We know that patients’ and caregivers’ time is valuable and to date, have paid them over $10 million dollars for participating in research. We work with clients, industry partners, and patient groups to help change healthcare - one Rare Patient Voice at a time! Visit us at rarepatientvoice.com.