Dravet Syndrome Foundation Spain

Exhibitor & Supporting Partner

The Dravet Syndrome Foundation Spain (FSD) was established on May 31st, 2011. Its foundation was driven by a group of parents who refused to accept the fate dictated by the disease affecting their children. Dravet syndrome (DS) is a catastrophic form of childhood epilepsy that impacts the developing brains of affected children, leaving them with severe neurological consequences. This group of parents decided to combat the illness through research, awareness, and support for affected families.

Our organisation aims to promote, encourage, and connect the world’s leading research centers focused on DS and related disorders. It is based on the principle of a collaborative model that brings together professionals, patients, researchers, doctors, volunteers, and sponsors in the search for an effective therapy.
The main goal is to break the barriers that stop DS research from advancing, and to discover effective drugs and treatments that allow to eliminate, mitigate, or even cure the disease.
We want to provide researchers with the necessary incentives to carry out their job while also building a valid business model for the pharmaceutical industry. We want to support families in every possible way, and to make them feel accompanied in their difficult day-to-day journey. We also want to make the invisible visible, and to raise awareness about DS.
 

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