WEBINARS

 

 

The World Orphan Drug Congress, Europe is offering our orphan drug community a virtual space to connect, share ideas and discuss key topics until we are able to meet face to face.

 

PAST WEBINARS

 

Tuesday 7th July - 3pm BST/ 10am EST

How do we ensure continued patient access to ATMPs & orphan drugs during and after a pandemic?

  • Exploring the impact on patient access and treatments
  • How have treatments centers changed their procedures? What will this mean for the future?
  • How are we working to identify and improve barriers to new payment models?
  • Implementing a multi-stakeholder approach to ensure robust RWE generation and utilization
  • How will RWE help fill evidence gaps to payers?
Doug Danison, Senior Vice President, Market Access, Value & Evidence Strategy,  bluebird bio
Etienne Jousseaume, Head Market Access Cell& Gene Therapy,  Novartis Oncology
Paolo Morgese, EU Director Market Access & Member Relations,  Alliance for Regenerative Medicine  
Michela Gabaldo, Head, Alliance Management & Regulatory Affairs,  Fondazione Telethon 
Josie Godfrey, Director,  JG Zebra Consulting

Doug Danison, Senior Vice President, Market Access, Value & Evidence Strategy, bluebird bio

Etienne Jousseaume, Head Market Access Cell& Gene Therapy, Novartis Oncology

Paolo Morgese, EU Director Market Access & Member Relations, Alliance for Regenerative Medicine

Michela Gabaldo, Head, Alliance Management & Regulatory Affairs, Fondazione Telethon

Josie Godfrey, Director, JG Zebra Consulting

16th June

Optimising clinical development strategies for gene therapies and orphan drugs as a whole

  • How do we overcome clinical trial design hurdles?
  • Exploring alternate clinical trial designs
  • Engaging patients as early as possible
  • Building new drug development frameworks (galaxy guide)
Anne Pariser, Director, Office Of Rare Diseases Research, National Center For Advancing Translational Sciences - NCATS, NIH
Christeen Moburg,Senior Director, Patient Advocacy, Sangamo Therapeutics
Dr Diego Ardigo, Chair, IRDiRC Therapies Scientific Committee & R&D Rare Diseases Unit Head, Chiesi Group
Samantha Parker, SVP & Chief Patient Access Officer, Lysogene
Virginie Hivert, Therapeutic Development Director, Eurordis
 

Anne Pariser, Director, Office Of Rare Diseases Research, National Center For Advancing Translational Sciences - NCATS, NIH

Christeen Moburg,Senior Director, Patient Advocacy, Sangamo Therapeutics

Dr Diego Ardigo, Chair, IRDiRC Therapies Scientific Committee & R&D Rare Diseases Unit Head, Chiesi Group

Samantha Parker, SVP & Chief Patient Access Officer, Lysogene

Virginie Hivert, Therapeutic Development Director, Eurordis

 

26th May

Insight from industry: Effect of COVID-19 on gene therapy development

The panel discussion explored:
  • Implication on business
  • Effect on gene therapy clinical trials, clinical development & manufacturing
  • Patient recruitment
Sander Van Deventer, EVP, Research & Product Development, UniQure , Founder & Managing Partner, Forbion Capital Partners
Thomas Bols, Head of Government Affairs and Public Policy, EMEA & APAC, PTC Therapeutics
Lance Weed, Former Vice President Operations, UniQure
 

Sander Van Deventer, EVP, Research & Product Development, UniQure

Thomas Bols, Head of Government Affairs and Public Policy, EMEA & APAC  PTC Therapeutics

Lance Weed, Former Vice President Operations, UniQure

 

 

WATCH ON DEMAND

 
 

INTERESTED IN RUNNING YOUR OWN WEBINAR?

 

Webinars are a powerful way to connect with your audience, promote your services and technologies and generate new leads. 

Discover the ways our webinars can help you:

  • Promote new technologies and innovations
  • Demonstrate existing and complicated processes
  • Keep your brand front of mind
  • Get brand and marketing exposure
  • Take advantage of our marketing activities:
  • Raise credibility
  • Generate leads and make sales

 

To find out more, email marc.rhys-evans@terrapinn.com

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World Orphan Drug Congress

 

The World Orphan Drug Congress provides you with a one stop progressive scientific and strategic solution to the orphan drugs industry.

 

 

Contact us


To sponsor or exhibit contact:
Marc Rhys-Evans

marc.rhys-evans@terrapinn.com

To speak:
Wing-Yun Cheung

wing-yun.cheung@terrapinn.com