Will Greene is a rare disease researcher and patient advocate based in the San Francisco Bay Area. He serves on the board of the Foundation for Prader-Willi Research (FPWR), where he provides strategic oversight and supports efforts to accelerate research, advocacy, and community engagement. He is also lead author on a 2026 white paper with the World Economic Forum exploring the case for greater societal investment in rare disease research. Before moving full-time into rare disease, Will spent more than a decade in strategic and commercial roles across the pharmaceutical, diagnostics, and digital health sectors, primarily in the Asia Pacific region. He has worked in corporate, startup, and nonprofit settings worldwide, leading initiatives that connect science, technology, and patient needs. He holds a B.A. in Political Science from Amherst College.
A new. World Economic Forum white paper argues that stronger rare disease data systems can accelerate medical progress for patients while unlocking economic productivity and technological innovation for society at large. This session will explore the report’s findings and recommendations, along with broader perspectives on the role of different stakeholders in elevating rare diseases on the global agenda and translating these ideas into action.