World Orphan Drug Congress USA 2020 will feature 3 pre-conference seminars, featuring pressing and emerging topic areas with huge impact on rare disease research and orphan drug commercialization.
Paying for orphan drugs is one of the most contentious issues in the struggle for patient access nowadays. On this seminar, payers from around the world will discuss approaches and strategies to improve pricing & reimbursement in rare diseases, including innovative pricing schemes and optimization of value-based assessments.
We look to the most innovative and novel approaches in therapeutic development to bring about the next generation of potential treatments and even cures for rare disease patients. Learn about novel pipelines, approaches and candidates on the Next Generation Therapies Seminar, where someday these technologies and therapies could be the common place to treat rare diseases
When developing therapies for rare and ultra-rare diseases the value of patient data is immensurable. Though patients and their families are usually willing to share their data to advance research being their individual causes, issues with data privacy, ownership, consent and handling are still a big hurdle impeding the progress of utilizing data to identify patients, shorten the time for an accurate diagnosis, build disease knowledge, expedite R&D, and enhance access to available therapies. This seminar will cover all these topics.
The pre-conference workshops are an exclusive opportunity for solution and technology providers, consulting firms and healthcare communications agencies to engage with a targeted audience for 3 to 4 hours and engage with them through interactive and insightful discussions about the most challenging topics in rare diseases, such as: