Helping Hands for GAND

Startup

To support individuals and families affected by GATAD2B-associated neurodevelopmental disorder (GAND), to increase awareness, and to work toward research and treatment opportunities to enrich the lives of those with this rare genetic condition.


HHFG desires to help GAND families better understand this disorder and connect with other GAND families online, in their local areas when able, and at the biennial GAND Gathering & Scientific Conference.

 

HHFG aims to raise awareness of GAND among the general population as well as medical and support professionals. Most doctors, therapists, and teachers have never seen a case of GAND and have not likely even heard of it.

 

HHFG seeks to increase research and treatment opportunities for the GAND community through establishing a patient registry and by facilitating and potentially funding worthwhile studies.



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