Scott Kahn | Former CIO and VP Informatics

Scott Kahn, Former CIO and VP Informatics, Illumina


Day One @ 14:20

Transforming Shared Data into Useful Data Resources

  • Data is often silo-ed by the disease being studied due to the study protocol
  • Lack of standardization of ontologies and data definitions complicate inter-study aggregation
  • Challenges remain for sharing of data due to differing laws and participant concerns
  • Collection of additional data designed to enhance the ability to connect data sets can be transformational
  • Repurposing extant clinical and observational trial data for secondary projects can broaden impact
  • Building networks of data sets between disease areas can advance precision medicine

back to speakers