Ronald A. Christensen, M.D.,
Chief Medical Officer,
Mapi group
joined us at the 4th Annual World Orphan Drug Congress USA to speak about
"Implementing Rare Disease Registries:Unique Challenges & Proactive Solutions."
Download this presentation to find out more about the challenges and solutions of rare disease registries such as:
-
Flexible Study Design
-
Diverse Disease Spectrum/Representativeness of Data
-
Investigator Recruitment
-
Regulatory & Ethics Considerations
-
Patient Identification & Recruitment
-
Patient Retention
-
Direct-to-Patient Contact
…and much more!
Get your copy here!