Benoit
Arnould
,
Senior Director, Patient-Centered Outcomes,
MAPI
Group
joined us at the
World Orphan Drug Congress USA 2016
to detail why PROs in rare disease research and the challenges for patient-centered outcomes research in rare diseases, which include:
-
Generic measures inappropriate
-
Functional limitations to Self-Reporting
-
Conceptual model too rich and complex
-
Issues for testing quantitative scores
Join us at the
World Orphan Drug Congress USA 2017
to hear more about PROs >>