Dr Segolene Ayme | Founder of Orphanet & Rare Disease Expert in Residence

Dr Segolene Ayme, Founder of Orphanet & Rare Disease Expert in Residence, Inserm

Ségolène Aymé is Emeritus Director of Research at the French Institute of Health and Medical Research (INSERM). She now acts as expert in residence for rare diseases at the Brain and Spine Institute in Paris, and serves as Editor-in-Chief of the Orphanet Journal of Rare Diseases. She was the founder of Orphanet in 1997 and Executive Manager up to 2011. She chaired the EU Committee of Experts on rare Diseases (2010 to 2013), the WHO Topic Advisory Group for Rare Diseases (2007-2016) and managed the scientific secretariat of International Rare Disease Research Consortium (2012-1015).


Day 2 Orphan 15th Nov @ 08:35

Executive industry discussion: Intentions of pharmaceutical companies developing treatments for rare disease patients – What do they hope to achieve?

  • The evolving role of pharma and multi-stakeholders
  • What are the challenges?
  • What are the options moving forward?
  • How do we work together to improve this?

Day 2 Orphan 15th Nov @ 13:35

Chair's opening remarks

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