Pamela Gavin | Chief Strategy Officer
National Organization for Rare Disorders

Pamela Gavin, Chief Strategy Officer, National Organization for Rare Disorders

Pamela Gavin sets the strategic direction for NORD and oversees the implementation of the programs and services that support the rare disease community. Before NORD, Pam worked to execute healthcare programs aimed at improving safety and delivery. For the federal government, she implemented a new web-based portal for safety data reporting to FDA and NIH, for which she was honored for outstanding leadership. She also co-founded SafeCare™ Systems, which developed one of the country’s first patient safety management systems.


Day 2, Nov 8 @ 10:10

Recommendations on sustainable access to innovative therapies

  • Ensuring the sustainability of health spendingas well ascontinued innovation that meets patient needs
  • How does the current pricing system need to change to compliment this?
  • Are novel pricing & reimbursement mechanisms for gene therapy products necessary?
Followed by feedback from global stakeholders on value vs pricing and affordability
  • Are we paving the way to a fair, inclusive and on-going multi-stakeholder approach with the potential to generate sustainable, affordable and actionable improvements in patient access to rare disease therapies?
  • Balancing between recouping costs for R&D and incentives to support investment in future treatments that ultimately access to patients
last published: 17/Oct/18 12:05 GMT

back to speakers

Follow us on


Sign Up for Event Updates

Get Involved At World Orphan Drug Congress 2018


To Sponsor Or Exhibit


Andrew Mears
t/ +44 20 7092 1228


To Speak


Wing-Yun Cheung
t/ +44 20 7092 1172


To Register


Issa Mauthoor
t/ +44 20 7092 1257