Edmund Jessop | Medical Adviser
National Health Service

Edmund Jessop, Medical Adviser, National Health Service

Edmund Jessop has been practising public health for the NHS in England since 1981 in various jobs at district, regional and national levels. Since 2002, he has been medical adviser to the team which plans, funds and monitors services for patients with very rare disease. This has included decision making, and more recently close liaison with NICE, on the so-called “ultra-orphan” drugs as well as other highly specialised technologies. Edmund is UK representative to the EU Expert Group on Rare Disease. 

He was Vice President of the UK Faculty of Public Health (FPH) from 2011 to 2014 and Editor of the Journal of Public Health 1998 - 2007. He has taught courses on public health including health economics and health technology assessment for over 15 years.


Day 1 Orphan 14th Nov @ 09:00

Plenary discussion: ORPH-VAL Using best practice European principles in assessing the value of orphan medicines: Correcting the discrepancy between countries

  • How do these principles compare to the criteria that current countries use?
  • Opportunity for different European payers/HTAs to openly suggest what is realistic and why
  • Creating a harmonised and sustainable model adapted to rare diseases
  • How is it acceptable that each country has a different post marketing criteria?
  • What are the interests of payers and HTA bodies when considering how to improve access to rare disease therapies?

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