Advisory Board

Wills Hughes-Wilson, Former Senior Vice President, Chief Patient Access Officer, Sobi

Wills Hughes-Wilson  
Head of Patient Access & Commercial Planning 
Mereo Biopharma

Professor Michael Linden, Former VP Gene Therapy & Head, GMI, Pfizer

Professor Michael Linden   
Former VP Gene Therapy & Head, GMI
Pfizer

Yann Le Cam, Chief Executive Officer, EURORDIS

Yann Le Cam  
Chief Executive Officer  
EURORDIS

Dr Ségolène Aymé, Founder of Orphanet, Emeritus Research Director, INSERM

Dr Ségolène Aymé  
Founder of Orphanet, Emeritus Research Director
INSERM

Dr Bruno Sepodes, Chair of COMP, EMA

Dr Bruno Sepodes   
Chair of COMP
EMA

Sheela Upadhyaya, Assoc. Director Highly Specialised Technologies, National Institute For Health and Care Excellence

Sheela Upadhyaya   
Assoc. Director Highly Specialised Technologies
National Institute For Health and Care Excellence

Alastair Kent, Director, Genetic Alliance UK

Alastair Kent   
Former Director
Genetic Alliance UK

Dr Carlo Incerti, SVP, Head of Global Medical Affairs, CMO, Genzyme, A Sanofi Company

Dr Carlo Incerti    
SVP, Head of Global Medical Affairs, CMO
Genzyme, A Sanofi Company

Dr Mathew Pletcher, Head of Rare Disease Discovery, Roche

Dr Mathew Pletcher  
Head of Rare Disease Discovery
Roche

Dr M Ken Kengatharan, Managing Director, Atheneos Capital

M Ken Kengatharan  
Managing Partner, Atheneos Ventures and CEO
Auxesia Orion

Dr Birgitte Volck, SVP, Head of R&D Rare Diseases, GSK


Dr Birgitte Volck  

SVP, Head of R&D Rare Diseases 
GSK

Dr Pedro Franco, Former Scientific Administrator, EMA


Dr Pedro Franco  

Former Scientific Administrator 
EMA

Rick Thompson, CEO, Findacure


Rick Thompson  
CEO 
Findacure

Dr Alexander Natz, Secretary General, EUCOPE


Dr Alexander Natz 
Secretary General
EUCOPE

Anna Bucsics, Project Advisor, MoCA


Anna Bucsics 
Project Advisor
MoCA 

Josie Godfrey, Former Associate Director, NICE

Josie Godfrey  
Former Associate Director
NICE

Dr Diego Ardigo, Chair, IRDiRC Therapies Scientific Committee & R&D Rare Diseases Unit Head at Chiesi Group

Dr Diego Ardigo 
Chair,  IRDiRC Therapies Scientific Committee & R&D Rare Diseases Unit Head at  Chiesi Group

Steve Groft, Senior Advisor to Director, National Center for Advancing Translational Sciences (NCATS), NIH

Steve Groft 
Senior Advisor to Director
National Center for Advancing Translational Sciences (NCATS), NIH

Durhane Wong-Rieger, Chair of RDI and CEO, CORD

Durhane Wong-Rieger 
Chair of  RDI  and CEO,   CORD

Dr Josep Torrent-Farnell, Head of the medicine division, CatSalut

Dr Josep Torrent-Farnell
Head of the medicine division
CatSalut

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