Stephen Groft | Senior Advisor to the Director, NCATS

Stephen Groft, Senior Advisor to the Director, NCATS, N.I.H

Steve is the former Director of the Office of Rare Diseases (ORD) at the National Institutes of Health (NIH). His major focus is on stimulating research with rare diseases and developing information about rare diseases and conditions. To help identify research opportunities and establish research priorities, the Office has co-sponsored over 1000 rare diseases-related scientific conferences with the NIH research Institutes and Centers. Current activities include developing genetic tests for rare diseases, developing an educational module on rare diseases for school children, establishing a public information center on genetic and rare diseases, maintaining the Rare Diseases Clinical Research Network, and providing a special emphasis clinic with senior clinical staff for patients with undiagnosed diseases at NIH’s Clinical Research Center Hospital. Steve received the B.S. degree in Pharmacy in 1968 and the Doctor of Pharmacy degree from Duquesne in 1979.

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