Samantha Parker MBA is Lysogene’s Chief Patient Access Officer. Samantha is responsible for providing global patient access strategic leadership. Samantha has specialised in rare disease research and public health for about 20 years. She has focused on expanding the expert disease community of healthcare professionals, patients, industry and regulators; building disease registries and natural history studies; developing consensus care guidelines; and developing strategies to improve the quality of diagnosis and patient care. Ms. Parker contributed, for several years, to the area of independent professional education in rare diseases. She is a member of the European Group of Experts on Rare Diseases (EGRD) and the International Rare Diseases Research Consortium (IRDiRC).