Ron Bartek | Co-Founder/Founding President
Friedreich's Ataxia Research Alliance

Ron Bartek, Co-Founder/Founding President, Friedreich's Ataxia Research Alliance

Mr. Ronald Bartek is FARA's Co-founder and President; Chairman of the Board of the National Organization for Rare Disorders (NORD); 4-year member, NIH National Advisory Neurological Disorders and Stroke Council, and former partner and president of a business and technology development, consulting, and government affairs firm. Mr. Bartek’s professional experience also includes twenty years of federal executive branch and legislative branch service in defense, foreign policy and intelligence: including six years on the Policy Staff of the House Armed Services Committee; four years at the State Department's Bureau of Politico-Military Affairs, including a year as a negotiator on the U.S. Delegation to the Intermediate-Range Nuclear Forces (INF) Treaty talks in Geneva; six years as a CIA analyst of political-military aspects of the East-West balance, including a year as an Intelligence Community representative to the interagency groups charged with U.S. arms control policy, and former Director, American Friends of the Czech Republic. Following graduation from the United States Military Academy at West Point, Mr. Bartek spent four years as an Army officer, serving as a company commander in Korea and an Infantry and Military Intelligence officer in Vietnam. He has a Master’s Degree in Russian Area Studies from Georgetown University.


World Orphan Drug Congress USA 2018 - Conference Day One @ 15:40

Beyond “patient focused drug development” buzzwords - let’s get practical

  • Industry and patient partnerships for clinical trial design and execution, funding discussions and community  outreach
  • Patients as board members through the product lifecycle to impact the needs of the community
  • Partnering with patients in a compliant way and achieving support from government and academic institutions to drive scientific research 

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