Romina Ortiz | VP Policy & Patient Advocacy
Rare Genomics Institute

Romina Ortiz, VP Policy & Patient Advocacy, Rare Genomics Institute

Romina Ortiz completed her undergraduate degree in Neuroscience and master’s degree in Molecular Microbiology and Immunology at Johns Hopkins University. Her thesis focused on the interplay between the microbiome and hormones in autoimmune disease. She is a co-founder of Rare Genomics Institute (RG), VP of Patient Advocacy and Policy and Director of Research Sites at RG. She trains volunteers in RG on the topics of Genetics, Genetic Sequencing and Inherited disease, as well as develops and directs programs to connect undiagnosed genetic disease patients to partner CLIA certified laboratories for next generation sequencing, analysis and follow up research based on results with the common goal to integrate phenotypic medical information with genomic data to identify the genetic cause to disease and a path to treatment and a cure.

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