Pamela Gavin | Chief Strategy Officer
National Organization for Rare Disorders

Pamela Gavin, Chief Strategy Officer, National Organization for Rare Disorders

Pamela Gavin sets the strategic direction for NORD and oversees the implementation of the programs and services that support the rare disease community. Before NORD, Pam worked to execute healthcare programs aimed at improving safety and delivery. For the federal government, she implemented a new web-based portal for safety data reporting to FDA and NIH, for which she was honored for outstanding leadership. She also co-founded SafeCare™ Systems, which developed one of the country’s first patient safety management systems.


World Orphan Drug Congress USA 2018 - Conference Day Two @ 15:10

35 Years: Where have we come and where are we going

  • A look at the progress the rare disease community has made over the last 35 years, since the founding of NORD and the passage of the Orphan Drug Act
  • NORD's POV on the current state of affairs in the United States in health care, policy, research, and awareness
  • Where are science and medicine heading, and where does the rare disease community need to focus its attention and efforts to ensure sustainability for the next 35 years

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