Barbara has been involved in patient advocacy activities for patients with rare diseases for the past 15 years at Ucyclyd Pharma and BioMarin. She joined Audentes Therapeutics as Vice President of Patient Advocacy and Medical Affairs in 2013. She has been actively involved with the National Organization of Rare Diseases, International Conference of Rare Disorders, and the Global Genes Project. Currently she serves on the Boards of the International Conference on Rare Disorders and the Batten’s Disease Support and Research Association. Additionally she is a founding board member of the Professional Patient Advocates in the Life Sciences. She holds Bachelor’s and Masters degrees in nursing.