Barbara Wuebbels, RN, MS Vice President of Patient Advocacy Audentes Therapeutics
Barbara has more than 15 years of experience working with patients, patient organizations and clinicians in the rare disease community. Since October 2013, Barbara has served as Vice President of Patient Advocacy for Audentes Therapeutics. Prior to joining Audentes, she spent 6 years at BioMarin Pharmaceutical Inc. where she held positions of increasing responsibility in patient advocacy and medical affairs. This work included the creation of a global patient advocacy and investigator relations department. Through this new department, she linked the critical perspectives of patient advocates with the internal planning of clinical and commercial activities.
She is a co-founder of Professional Patient Advocates in the Life Sciences, a non-profit dedicating to developing the role of professional advocacy in pharmaceutical and life science organizations.
She is a board member of the Battens Disease Support and Research Association and the International Conference on Rare Diseases. She serves on the education committee of Global Genes and the fund raising committee of Bio Pontis.